The Board of Directors of the Institute for Patient- and Family-Centered Care consists of five individuals with demonstrated experience and expertise in organizational, and business management, grants, as well as in-depth knowledge of health care issues.
Beverley H. Johnson is President and Chief Executive Officer of the Institute for Patient- and Family-Centered Care (IPFCC) in Bethesda, MD. She has provided technical assistance and consultation for advancing the practice of patient- and family-centered care and creating effective partnerships with patients and families to over 300 hospitals, health systems, federal, state, provincial agencies, military treatment facilities, and community organizations.
Bev served on the inaugural Advisory Board for the American College of Physicians’ Center for Patient Partnership in Healthcare. She is currently a member of the Board of Directors for the Patient-Centered Primary Care Collaborative (PCPCC) and has recently been appointed to the Board of Directors for the Association of American Medical Colleges (AAMC). She also serves on the Selection Committee for the American Hospital Quest for Quality Prize.
Bev is a past recipient of the Lloyd Bentsen Award and the Humanitarian Award from Pediatric Nursing. In 2007, she received The Gravens Award for leadership in promoting optimal environments and developmental care for high-risk infants and their families, and The Changemaker Award by the Board for the Center for Health Care Design. In 2008, the National Perinatal Association presented Bev with the Stanley L. Graven Award. More recently, she was a recipient of a Dorland Health 2011 People Award. In 2017, she was recognized by the American College of Physicians with the Edward R. Loveland Memorial Award.
Elizabeth Crocker, MEd, serves as Vice President of the IPFCC Board. Liz is an experienced businessperson and is the founder and owner of Canada’s oldest children’s bookstore and the former owner of a network of stores specializing in environmentally sound products. In addition, she has been a Clinical Teaching Associate with the Learning Resource Centre at Dalhousie University working as a Simulated Patient with medical students. She has created and directed a large Child Life Department, served as Treasurer and President of the Board of the Association for the Care of Children’s Health, and was President of the Canadian Institute for Child Health. Liz has been a hospital trustee and now serves on the board of a hospital foundation. Liz is also a Board Member of the Saskatchewan Health Quality Council.
In the past, Liz has been a broadcaster and journalist, worked in the political arena, and mentored young entrepreneurs. Along with Bev Johnson, she co-authored Privileged Presence, which is now in its second edition. She is the lead author of a new book, Transforming Memories, Sharing Spontaneous Writing Using Loaded Words. Liz is a fun-loving grandmother to three children.
Terri L. Shelton, PhD, is the Treasurer. Terri is Vice Chancellor for Research and Engagement and the Carol Jenkins Mattocks Distinguished Professor at University of North Carolina at Greensboro. She has published more than 60 articles and received more than $20 million in grants. Terri has 25 years of clinical experience, including initiatives that build the capacity of families, service providers, researchers, teachers, and communities to ensure the health and well-being of youth, families, and communities. Terri's work includes engaging partnerships that bridge research, policy, and evidence-based practice. She is co-author of the text Assessing Attention-Deficit/Hyperactivity Disorder and the monograph, Family-Centered Care for Children Needing Specialized Developmental Services.
William E. Schwab, MD serves as Secretary of the IPFCC Board. Bill is Professor and Vice Chair of the Department of Family Medicine and Community Health at the University of Wisconsin School of Medicine and Public Health. In addition to being an active clinician and teacher, he has served as Director of Clinical Operations for the DFM, as director of its Madison Family Medicine Residency Program, and as director of a state-funded initiative to address the shortage of physicians practicing in small communities. He has also been a member of the Board of Directors of the University of Wisconsin Medical Foundation, the group practice organization for the more than 1300 medical school faculty clinicians at the University of Wisconsin.
A nationally recognized leader in patient- and family-centered care as well as in medical education about the care of children and adults with chronic illness and disabilities, Bill is a frequent speaker and consultant to health systems, medical schools, and community agencies around the country. He has been the principle investigator for the National Medical Home Autism Initiative, funded by the federal Maternal and Child Health Bureau, and the PI of a project funded by the U.S. Centers for Disease Control and Prevention to enhance development screening by family physicians. He has been the recipient of the Humanism in Medicine Award from the Society of Teachers of Family Medicine jointly with the Arnold P. Gold Foundation, the Educator of the Year Award from the Wisconsin Academy of Family Physicians, and the Baldwin E. Lloyd, MD, Clinical Teacher of the Year Award from the University of Wisconsin Department of Family Medicine.
Bill has been on the teaching faculty of more than 30 intensive seminars presented by IPFCC on advancing patient- and family-centered care in medical education, community services, ambulatory health care, and hospitals.
Nancy DiVenere, BA, is a Member-at-Large of the Board of Directors. Nancy is co-founder and past president of Parent to Parent USA, a non-profit committed to promoting access, quality, and leadership in parent to parent support nationally. Nancy is also the founder and former Executive Director (1987-2004) of Parent to Parent of Vermont, a statewide organization promoting health and well-being for families with children and young adults with special needs. During her tenure, Nancy served as adjunct faculty in the Department of Pediatrics, University of Vermont College of Medicine, developed curriculum on family-centered care, prepared and supported Family Faculty in teaching roles, and conducted seminars for medical students and pediatric residents. She also served as Family Faculty for the University's Interdisciplinary Leadership Education for Health Professional Program. Nancy is a consultant to Vermont Children's Hospital Patient and Family Advisory Council, and a recipient of the 1998 Robert Wood Johnson Foundation Community Health Leadership Award.