Beverley H. Johnson, President and Chief Executive Officer, IPFCC
Beverley H. Johnson has provided training and technical assistance to over 300 hospitals, health systems, primary care practices, hospital associations, and federal, state, and provincial agencies. She has authored many publications on patient- and family-centered approaches to care, professional education, and research. For 12 years, Bev served on the Selection Committee for the AHA-McKesson Quest for Quality Prize. She was a member of the inaugural Advisory Board for the Center for Patient Partnership of the American College of Physicians. She is currently a member of the Board of Directors of the Patient-Centered Primary Care Collaborative.
Bev, working as an individual or with interdisciplinary teams and patient and family advisors, has conducted organizational assessments, and assisted hospitals, health systems, and ambulatory programs with leadership development, changing the culture of an organization, facilitation of visioning retreats, and the integration of patient- and family-centered concepts in policies, programs, and practices, as well as in facility design, the education of health care professionals, and research and evaluation. She has helped hospitals change the concept of families as visitors, partner with patients and families to enhance quality and safety and reduce readmissions, and implement patient engagement strategies at all levels of the organization.
Bev has extensive experience as a public speaker, providing keynote and plenary sessions, participating on panel discussions, and facilitating interactive workshops and other breakout sessions.
Marie Abraham, MA, Vice President, Programming and Publications, IPFCC
Since joining IPFCC in 1996, Marie’s work has included providing consultation to hospitals and health care systems that are working toward patient- and family-centered change and building partnerships with patients and families to improve and redesign health care; developing resource materials and co-authoring publications; and serving as a planner and faculty member for IPFCC conferences, seminars, webinars, and other training efforts. Marie is the project lead for a PCORI-funded project, “Creating Capacity for Sustainable Partnerships with Patients and Families in Research.” She is project lead for the “Patient and Family Centered Care Learning Collaborative” for the Long Island Health Network. Marie has served as faculty and as a consultant for national quality improvement collaboratives including the Vermont Oxford Network, the National Initiative for Children’s Healthcare Quality, and the Institute for Healthcare Improvement. IPFCC has served as subcontractor for several grants funded by the Agency for Healthcare Research and Quality. In two of these projects, Marie ensured patient and family participation in key stages of the research process and that deliverables would be valuable and meaningful to patients and families. She served for nine years on a parent advisory group for the American Academy of Pediatrics.
Deborah Dokken, MPA, Family Leader Consultant, IPFCC
Deborah L. Dokken is currently a consultant to IPFCC. Deborah's career in family advocacy grew out of her own personal experiences, including the loss of two infants due to prematurity and her husband's long battle with a rare abdominal cancer. As a result, Deborah became involved in programs that improve family support and enhance family participation in health care.
Deborah was the Associate Director of the Initiative for Pediatric Palliative Care (IPPC). She co-founded the nonprofit, community-based organization Partners in Intensive Care, and was a founding member of the Parent Partners Group at The George Washington University Hospital. Deborah has been a member of committees of the Institute of Medicine, the Food and Drug Administration, and the National Institutes of Health. At Sibley Memorial Hospital in Washington, DC, she is a member of the Patient and Family Advisory Committee. She is also co-editor of the Family Matters section of Pediatric Nursing journal, the co-author of several articles related to family-centered and pediatric health care, and has presented at many conferences.
Mary Minniti, BS, CPHQ, Senior Policy and Program Specialist, IPFCC
Mary Minniti works on national initiatives including Partnership for Patients (HIIN) and CMS Transforming Clinical Practice Initiative (TCPI) as the lead for IPFCC collaboration with the PCPCC SAN and ACP SAN, developing resources and training on patient and family engagement especially in quality and safety. She conducts onsite assessments for integrated and community hospital systems, makes recommendations for how to engage patients and families effectively, and provides ongoing coaching and training. She recently completed a Collaborative on Patient and Family Engagement with 25 hospitals in Oregon in partnership with the Oregon Association of Hospital and Health Systems. She is the lead author on a Robert Wood Johnson Foundation funded report, Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations.
Mary has worked in quality improvement for more than 30 years—16 years with PeaceHealth. She has been actively involved in Oregon’s health care reform work especially related to primary care transformation. She led efforts to integrate patients and families into clinic redesign efforts. She served on Oregon’s Health Incentives and Outcomes Committee and participated in creating the state’s Patient-Centered Primary Care Medical Home standards. The recommendations of a taskforce she led established the Patient-Centered Primary Care Home (PCPCH) Technical Institute, which supports clinics across Oregon in meeting PCPCH standards. She is currently serving as a member of the NCQA’s 2017 Medical Home Standards Taskforce. Additionally, Mary was the Principal Investigator for an AHRQ funded-study on Medication Management at Home: Patient Identified Processes and Risk Assessment.
Kelly Parent, Program Specialist for Patient and Family Partnerships, IPFCC
Kelly Parent, in her role as Program Specialist, provides training and consulting to hospitals, ambulatory care programs, and health care systems. She also coordinates the online forum, PFAC Network. She provides outreach to researchers, staff, and patient and family advisory councils at seven organizations for a PCORI-funded engagement project, “Creating Capacity for Sustainable Partnerships with Patients and Families in Research.” Before joining IPFCC's staff in 2015, Kelly served as faculty for IPFCC seminars, webinars, and conferences.
Additionally, Kelly served as the first PFCC Program Manager at the University of Michigan Health System (UMHS) creating and sustaining a volunteer patient and family advisor program and effecting PFCC culture change at executive, clinical, education, and research levels. Presently, Kelly is the UMHS PFCC Program Specialist for Quality and Safety creating partnership opportunities to reduce the potential for adverse events and ultimately, improve experiences and outcomes.
Kelly’s passion for patient- and family-centered care was established following her daughter’s cancer diagnosis and has spent time lobbying on Capitol Hill for increased funding for pediatric cancer research and health care programs for under-served children.
Maureen Connor, RN, MPH, Healthcare Consultant, Claremont Healthcare Consulting
Maureen Connor, RN, MPH, is a healthcare consultant with Claremont Healthcare Consulting, in Arlington, MA focusing on quality improvement, patient safety, and patient- and family-centered care. She is the former Executive Director of Quality and Safety for Patient Care Services at North Shore Medical Center (NSMC) in Salem, MA, a member of Partners HealthCare. Prior to joining NSMC, Maureen served as Vice President for Quality Improvement and Risk Management at the Dana-Farber Cancer Institute (DFCI) and Director of Quality Improvement at the Dana-Farber/Brigham and Women's Cancer Center, Boston.
At DFCI, Maureen played a major role in integrating patient safety into the culture of this academic medical center, collaborating with patients and family members from DFCI's patient and family advisory councils. She is a co-author of the consensus statement, When Things Go Wrong: Responding to Adverse Events, written to support the Harvard affiliated hospitals in communicating with patients and families about errors and adverse events.
Maureen worked with the MA Coalition for the Prevention of Medical Errors to assist health care organizations throughout Massachusetts in implementing state-mandated patient and family advisory councils. In addition, she was a co-investigator of a study that measured the impact of patients' participation in Patient Safety Rounds in the ambulatory clinics at DFCI and also a study on oral chemotherapy safety in ambulatory oncology. She has presented nationally and has published several articles on patient- and family-centered care.
Cherie A. Craft, MEd, CEO/Founding Executive Director, Smart from the Start
Having grown up in a housing project in inner city of Boston, Cherie Craft possesses a passionate commitment to bettering the lives of children and families, “at-risk.” Having earned a BS in Sociology and a MEd in Counseling Psychology, Cherie gained much of her early professional experience working in the Department of Pediatrics at Boston Medical Center, formerly Boston City Hospital. Initially recruited as a Family Advocate/Case Worker, before being recruited to lead the movement toward family-centered care, where her program, Parents as Partners, recruited, trained, and supervised diverse parent advocates from the community. She and her advocates taught the principles and practices of family-centered care to medical students and residents.
Cherie then went on to work closely with SAMSHA, US Administration for Children and Families and the Federation of Families for Children’s Mental Health, on a number of community-based outreach, education and evaluation initiatives. Currently employed as the CEO/Founding Executive Director of Smart from the Start, in Boston and Washington, DC, she leads programs, which recognize and build on the strengths of individuals and families despite their challenges, and creates opportunities for them to take their place at the table and for their voices to be heard.
For 17 years, Cherie has served as senior faculty with IPFCC, and sits on the Community Advisory Board of Boston Children’s Hospital. She has served two terms on the National Expert Panel on Substance Abuse and Child Welfare, and has been widely recognized as a leading authority on cultural competence, community engagement and empowerment, and family support. She presents both nationally, and internationally as an advocate for children and families.
Liz Crocker, MEd, Patient Advocate; Vice President, IPFCC
Liz Crocker is a businesswoman, writer, and teacher.
Liz has worked as a Simulated Patient and Clinical Teaching Associate with the Dalhousie School of Medicine. She is one of the founding owners of Woozles, the oldest children's bookstore in North America (founded in 1978), co-founder of Frog Hollow Books (sold in 1987) and co-founder of P'Lovers, a network of environmental stores (sold in 2014).
Liz established and directed a large Child Life Program at the IWK Children's Hospital, which developed an international reputation of excellence. She served as Treasurer and President of the Association for the Care of Children’s Health and President of the Canadian Institute of Child Health.
Liz is deeply committed to improving the quality and safety of all health care interactions and currently serves as an Honorary Trustee of the IWK Hospital Foundation; Secretary of Hospice Halifax; Board Member of Saskatchewan’s Health Quality Council; and Vice-Chair and Board Member of IPFCC.
Liz is the author of two children's books and hundreds of articles in books, magazines, and newspapers. In 2006, along with Bev Johnson (IPFCC President/CEO), she co-authored Privileged Presence, which is a collection of stories about experiences in health care with a focus on communication, collaboration, and compassion. A second edition was published in 2014. She also edited the book, The Healing Circle: Reclaiming Wholeness on the Cancer Journey, Integrating Science, Wisdom and Compassion, which was published in 2010. Her most recent book, published in 2017, is titled Transforming Memories: Sharing Spontaneous Writing Using Loaded Words.
Liz has been a broadcaster and journalist, worked in the political arena, been a teacher and mentored young entrepreneurs. She enjoys speaking about the power of health care stories, the value of writing, and the importance of clear and compassionate communication.
Susan Grant, RN, MS, FAAN, Executive Vice President & Chief Nursing Officer, Beaumont Health
Susan Grant is executive vice president and chief nursing officer at Beaumont Health. Beaumont is a not-for-profit organization formed by Beaumont Health System, Botsford Health Care and Oakwood Healthcare in southeast Michigan and consists of eight hospitals with 3,337 beds, 168 outpatient sites, 10,000 nurses, 5,000 physicians, 35,000 employees and about 3,500 volunteers.
Grant joined Beaumont in 2015 to oversee the nursing practice for the 10,000 nurses across Beaumont and to lead the organization’s strategic initiative around patient and family centered care. She came from Emory Healthcare in Atlanta, where she served as chief nurse executive and chief patient services officer since 2006. Under her leadership, Emory Healthcare created an enterprise-wide patient and family advisory program with over 250 patient and family advisors and Emory University Hospital achieved its first Magnet designation, and Emory Saint Joseph’s Hospital achieved its fifth designation.
Prior to joining Emory, Grant was chief nursing officer and senior associate administrator for patient care services at the University of Washington Medical Center in Seattle and chief of nursing and patient care services at the Dana-Farber Cancer Institute in Boston. She led the successful implementation of patient and family advisory programs at both institutions.
Grant earned a Bachelor of Science in Nursing at the Medical College of Georgia, master’s degree in psychiatric and community mental health nursing at the University of South Carolina and recently completed her doctorate in nursing practice at Vanderbilt University.
Terry Griffin, MS, APN-BC, Neonatal Nurse Practitioner, St. Alexius Medical Center, Hoffman Estates, IL
Terry Griffin is a Neonatal Nurse Practitioner at St. Alexius Medical Center in Hoffman Estates, IL where she was recognized as the impetus behind creating a family centered care NICU. She has worked at Rush University Medical Center in Chicago and has held faculty positions at the Graduate College of Nursing at the University of Illinois at Chicago. Her clinical experience is in the NICU as a staff nurse, Clinical Nurse Specialist, and as a Neonatal Nurse Practitioner; however, her specialty is patient- and family-centered care.
Terry’s area of interest is the relationship among staff, patients, and families. She has published and presented on many nursing topics, including partnerships with parents, transition to home, challenges that nurses and families face caring for babies in the NICU. She co-authored a book with a family leader on family-centered care for the newborn. Her research has examined the parental response to prenatal tours of the NICU and safety of parental involvement in the care of their hospitalized infants. Terry is a member of the National Association of Neonatal Nurses and has given many years of service to the March of Dimes, Chicago Chapter.
Roslyn Marshall, RN, BSN, MHSA, Nurse Manager, Neuroscience Center, Augusta University Medical Center
Roslyn Marshall is responsible for the day-to-day management of a 20-bed Neurosciences Intensive Care Unit, a 16-bed general care unit, and the ambulatory adult and pediatric neurology/neurosurgery, Multiple Sclerosis, ALS, EMG, Gamma Knife Program and Movement Disorders practice sites. The Neuroscience Center is widely recognized as a model for patient- and family-centered care.
Roslyn’s area of interest is partnering with patient advisors and leading staff in partnerships with patients and families. She serves as a champion for patient- and family-centered care in her hospital. She is the recipient of the health system's 2000 Nurse of the Year Award, 2004 Nursing Employee of the Year Award, 2004 RN of the Year Award and the 2006 Family Choice Award. She is also the first recipient of the prestigious, Pat Sodomka Leadership Award, in recognition of an international pioneer in Patient and Family Centered Care.
Roslyn has presented extensively on patient- and family-centered care at international conferences, the Institute for Healthcare Improvement, and the Case Management Society of America's National Conference. She has served as Faculty for IPFCC since 2008.
Julie Ginn Moretz, Family Leader/Associate Vice Chancellor, Patient- and Family-Centered Care, University of Arkansas for Medical Sciences
Julie Ginn Moretz is associate Vice Chancellor for Patient- and Family-Centered Care at the University of Arkansas for Medical Sciences (UAMS) in Little Rock, AR where she has overall leadership responsibility for developing clinical and academic programs related to patient- and family-centered care (PFCC). Her work is inspired by her young son’s battle with heart disease as he underwent multiple heart surgeries and a heart transplant. Early on, Julie recognized that she and her husband must be key players on his health care team for continuity of care and best possible outcomes. Initially, it was through this path—as the inaugural volunteer Chair of the Family Advisory Council at the Medical College of Georgia (MCG)—that Julie worked in partnership with health care leaders and clinicians to evaluate outdated policies and procedures that impacted health outcomes and patient engagement. She then became Director of Family Services Development at MCG, supporting both adult and pediatric services. She managed patient/family advisory councils, developed the Family Faculty program to incorporate PFCC concepts in medical and health professions education, and designed patient and family engagement strategies to improve the quality of care and the patient experience.
Prior to her current role at UAMS, Julie served as Director of Special Projects with the Institute for Patient- and Family-Centered Care and for nearly seven years, worked on a variety of projects to develop partnerships among health professionals, patients, and families.
Jeffrey Schlaudecker, MD, MEd, Associate Professor of Family Medicine, Kautz Family Foundation Endowed Chair of Geriatric Medical Education, The University of Cincinnati
Jeff Schlaudecker, MD, MEd, majored in Human Communication Science at Northwestern University and studied medicine at the University of Cincinnati College of Medicine. Following residency training in family medicine and a clinical fellowship in geriatric medicine, he began working with The Christ Hospital/University of Cincinnati Family Medicine Residency Program and Geriatric Medicine Fellowship as a geriatric hospitalist in 2007.
Dr. Schlaudecker became interested in patient- and family-centered care early in his training, and his question of how to apply interprofessional bedside rounding techniques to his geriatric patients served as the basis for his current HRSA Geriatric Academic Career Award and research support from the Donald W. Reynolds Foundation. He is an Associate Professor of Family and Community Medicine, and serves as the Geriatric Medicine Fellowship Program Director and Medical Director of The Christ Hospital Acute Care for Elderly (ACE) Unit. Jeff also completed his Master's in Education (MEd) with a focus on Adult Learning Theory in the fall of 2013. He was named the Kautz Family Endowed Chair of Geriatric Medicine Education in October 2014.
Juliette Schlucter, Director, Center for Child and Family Experience, Sala Institute for Child and Family-Centered Care, Hassenfeld Children’s Hospital of New York at NYU Langone Medical Center
Leveraging over two decades of leadership experience, Juliette Schlucter speaks and consults on patient and family-centered care assessment, programming design and implementation to advance quality, safety, education and the experience of care. Juliette has served as Faculty for IPFCC since 1996. From 1995 through 2010, Juliette provided leadership for hospital-wide implementation of patient- and family-centered care at The Children's Hospital of Philadelphia. In this role, Juliette created The Promise of Partnership, a toolkit used to teach health care professionals best practice behaviors for patient and family-centered care. She co-created the Family Faculty, established the Family Advisory Council, developed the Family-Centered Intern program and designed a Patient and Family Advisor training curriculum.
Juliette has authored and served as contributing author for numerous publications, including Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System. She has served on advisory councils for the Accreditation for Graduate Medical Schools, the Association of American Medical Colleges and the National Academies of Medicine.
Juliette came to her work, over 22 years ago, following the diagnosis of both her son and daughter with Cystic Fibrosis.
William Schwab, MD, Professor and Vice Chair, Department of Family Medicine and Community Health, University of Wisconsin School of Medicine and Public Health
Bill Schwab is Professor and Vice Chair of the Department of Family Medicine and Community Health at the University of Wisconsin School of Medicine and Public Health. In addition to being an active clinician and teacher, he has had leadership roles within the DFMCH in clinical operations, residency education, and rural health. He has also served as a member of the Board of Directors of the group practice organization for the more than 1300 medical school faculty clinicians at the University of Wisconsin.
A nationally recognized leader in patient- and family-centered care as well as in medical education about the care of children and adults with chronic illness and disabilities, Bill is a frequent speaker and consultant to health systems, medical schools, and community agencies around the country. He has been the principal investigator of research projects funded by the federal Maternal and Child Health Bureau, and the U.S. Centers for Disease Control and Prevention. Bill has been the recipient of the Humanism in Medicine Award from the Society of Teachers of Family Medicine jointly with the Arnold P. Gold Foundation, the Educator of the Year Award from the Wisconsin Academy of Family Physicians, and the Baldwin E. Lloyd, MD, Clinical Teacher of the Year Award from the University of Wisconsin Department of Family Medicine.
Bill has been on the teaching faculty of more than 40 intensive seminars presented by IPFCC. He is also an officer of the Board of Directors of the IPFCC.