Establishing a foundation of trust is at the core of effective partnerships. Successful patient and family collaboration in research is dependent upon open and transparent communication and relationships that are genuine. Listed by many PFAs as their top dissatisfying experience is “tokenism.” PFAs don’t want to feel that their participation is simply a checkmark in a box for researchers. They want to be active, contribute, and know they’re making a difference. They need to believe that their voice is of equal value among all team members and that they can speak honestly and freely. Trust and an atmosphere of partnership take time to develop.
To make initial meetings fun, use these icebreaker ideas.