IPFCC had the honor to work and learn together with the seven extraordinary organizations that participated in this project. Each of these organizations identified a Patient and Family Advisory Council, a dedicated staff liaison who coordinates the PFAC, and researcher/s that were interested in partnering in research; hosted a site visit from IPFCC staff; participated in learning activities; presented at IPFCC’s 7th International Conference; contributed resources and lessons learned; and reviewed materials included in this Toolbox.