In April 2015, the Institute for Patient- and Family-Centered Care (IPFCC) received a Eugene Washington PCORI Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI) for this two-year engagement project, "Creating Capacity for Sustainable Partnerships with Patients and Families in Research".

The funding from PCORI supported outreach IPFCC provided to Patient and Family Advisory Councils (PFACs), researchers, and health care professionals at seven organizations; featured programming at IPFCC’s 7th International Conference on Patient- and Family-Centered Care: Partnerships for Care, Interprofessional Education, and Research, held in New York City in July 2016; and the development and dissemination of this Toolbox.

Development and Dissemination of a Toolbox

This project was funded by the Patient-Centered Research Institute (PCORI) Engagement Award Initiative (IPFCC-1467). The content does not represent the views of PCORI, its Board of Governors, or Methodology Committee.

Creating Partnerships with Patients and Families in Research


Watch this webinar to learn more about this project and the Toolbox and hear three teams describe how patient and family advisors, researchers, and staff partnered in research efforts.