Greetings,

Enjoy April's issue of Pinwheel Pages, filled with articles and informative resources.

Join our next Informal Conversation for 2024,

Evaluating the Impact of Patient and Family Advisor/Partner Programs,

May 23rd at 1pm ET.

If you can’t attend live, you will have access to a recording, slides, and resources.

Kind regards,

The IPFCC Team

Upcoming PFCC.Connect Informal Conversation

May 23, 2024 from 1:00 – 2:00 pm ET

Join IPFCC for our next Informal Conversation, Evaluating the Impact of Patient and Family Advisor/Partner Programs. Measuring the impact and broadly sharing results of PFA/P efforts are critical to expanding and sustaining effective PFA/P programs. This Conversation will engage participants in a discussion about evaluation strategies and resources.

Thank you to our PFCC.Connect sponsors!

PFCCpartners' Free Community of Practice Workshop

Register for Building the Table Together: Lessons on Authentic Community Engagement from INSPIRE, a free Community of Practice Workshop from PFCCpartners on Friday, April 26th from 3-4pm EST (12-1pm PST). During this session, members of the INSPIRE team will share major findings from research drawing on the experiences of over 300 healthcare and community partners from across the country. The INSPIRE project is a national partnership project that brings together the Camden Coalition, Community Catalyst, the Center to Advance Consumer Partnership, PFCCpartners, and the Institute for Patient-and Family-Centered Care, alongside a team of experts with lived experience.

Patient Receives American College of Radiology’s Distinguished Achievement Award

American College of Radiology (ACR), an IPFCC Pinwheel Sponsor, announces their 2024 Medal Recipients in Washington DC. For the first time, ACR’s Distinguished Achievement Award posthumously recognized a patient, Amanda Crowell Itliong. Known for her compassion, openness and kindness, Amanda devoted her life to changing healthcare and the patient experience for the better. Although she passed away in 2023, her work on the representation and experience of patients in radiology and healthcare as a whole will have a lasting impact. Read more here. 

ACR, as a professional society, has a Commission on Patient- and Family-Centered Care to further its practice in radiologic care.

Addressing the Mental Health of Fathers During the Perinatal Period

In this April Health Affairs podcast, Fathers' Inclusion Within The Scope of Perinatal Mental Health, Alan Weil interviews Dr. Tova Walsh to hear about the importance of paying attention to the mental health of fathers. Recommendations for addressing this issue are presented. Listen to the podcast.

FREE Family Partnership Online Course Module

The Family Partnership Online Course Module was created by the National Family Support Technical Assistance Center in partnership with Boston University's Center for Psychiatric Rehabilitation.

The FAMILY Approach is a framework to strengthen core skills, tools, and practices for person-centered family partnerships. "FAMILY" is an acronym for the first letter of each of the module's 6 lessons. Each represents a critical area of partnership, applicable across all behavioral health settings.

UBC Health Patient and Community Partnership for Education (PCPE)

Patient and Community Partnership for Education (PCPE), a unit within the University of British Columbia Health, works to bring patient and community voices into the education of students in health and health-related disciplines to promote a partnership model of healthcare. PCPE facilitates patient involvement across interdisciplinary education, research, and health systems. Their Programs & Activities include numerous initiatives such as health mentors program, living library, and learning resources. Find their latest news here.

2024 IPFCC PINWHEEL SPONSORSHIP – Renew or Join Now! 

As a  2024 Pinwheel Sponsor your support assists IPFCC in continuing our work to transform health care by developing and sustaining meaningful partnerships with patients and families in all settings. Pinwheel Sponsor organizations will gain national and international visibility of your commitment to patient- and family-centered care. We invite you to renew or join today by completing the online Pinwheel Sponsor Application. If you need more information, please feel free to contact Sherry Hajec at shajec@ipfcc.org.

Special Thank You to Our Pinwheel Sponsor 2024 Renewals!

PFCC.Connect 

Providence Health Care

University Health

Health System 

Vanderbilt University Medical Center

Hospital

Akron Children’s Hospital

Children’s Mercy Kansas City

Children’s Specialized Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Moffitt Cancer Center

Penn State Health Milton S. Hershey Medical Center

St. Louis Children’s Hospital

Thunder Bay Regional Health Sciences Centre

University of New Mexico Children's Hospital

Wellstar MCG (formerly Augusta Health)