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Greetings,
We're excited to share these valuable resources and opportunities in our June issue of Pinwheel Pages.
IPFCC is embarking on a bold new chapter, as we launch the search for our next President and CEO. We are seeking a transformative leader who can build on our legacy and expand our impact.
Help us find our next great leader—please share the IPFCC Search Announcement with your networks and help us continue to transform health care together.
With thanks,
The IPFCC Team
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Announcing the Search for IPFCC's Next President & CEO
Today, IPFCC is officially launching a search for a strategic, passionate, and visionary President and CEO to guide our organization into its next phase of growth and impact.
We are seeking a transformational leader with deep expertise in patient- and family-centered care (PFCC) who can evolve our operational and financial models to ensure long-term sustainability. The new CEO will work collaboratively with our dedicated remote team and Board of Directors to expand partnerships, diversify revenue, and elevate IPFCC’s influence nationally and globally.
If you are a mission-driven leader dedicated to transforming health care by advancing authentic partnerships with patients and families, we invite you to apply.
How to Apply Interested candidates should submit a resume and letter of interest (including salary expectations) through your google account to our online IPFCC President and CEO Job Application. Your letter should specifically address your commitment to the key qualifications and attributes outlined in the IPFCC Search Announcement.
Bev Johnson, IPFCC President and CEO, will continue in her current role and support a smooth, leadership transition.
She will then shift primarily to consulting, providing training and technical assistance and serving on research advisory committees.
Liz Crocker, MEd, MSM, Vice President of the IPFCC Board of Directors, will chair the Search Committee.
Please share the IPFCC Search Announcement with your networks to help us find the next great leader for IPFCC!
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Resources and Opportunities | | |
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Developing INSPIRE's Community Engagement Assessment & Practice Library: Putting Values into Practice
In February 2026, INSPIRE (a coalition that brings together five organizations, Camden Coalition, The Center to Advance Consumer Partnership, Community Catalyst, PFCC Partners, and IPFCC focused on Initiating National Strategies for Partnership, Inclusion, and Real Engagement) launched the Community Engagement Assessment & Practice Library. It addresses a significant need identified by organizations for concrete, actionable guidance.
The resource includes a brief self-assessment that guides users through a series of questions about their organization’s community engagement practices.
Based on the responses, it then offers customized links to articles in the “Practice Library” – filled with implementation focused insights and real-world examples of authentic community engagement happening across the country.
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Closing the Alignment Gap |
"Closing the Alignment Gap: The Next Frontier for Whole-Person Care,” about Camden Coalition’s Community Ecosystem Alignment Tool (CEAT) was published in the June issue of Health Affairs Forefront as part of its series on accountable care for population health.
This framework evolved from lessons and experiences from the Camden Coalition’s 2020 randomized control trial and its technical assistance work nationwide.
The tool helps organizations assess and strengthen the relationships, workflows, governance structures, and shared accountability needed to deliver truly coordinated, whole-person care. The article is co-written with Dr. Purva Rawal, former Chief Strategy Officer at the CMS Innovation Center and currently Managing Principal at Health Transformation Strategies, who is working with the Camden Coalition to bring the tool to sites across the country.
The article reflects a core belief at the Camden Coalition: meaningful change requires not only innovative care models and payment reforms, but also the ability of organizations to work together on behalf of the people they serve.
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Family-Centered Care Taskforce Presence Study Toolkit
The new Family-Centered Care Taskforce Presence Study Toolkit was developed collaboratively by families and healthcare professionals to support clinicians, leaders, and family partners in strengthening parental presence in newborn intensive care.
Development of the toolkit was informed by findings from the Presence Study, funded by the Canadian Institutes of Health Research (CIHR), co-led by the MOM-LINC Lab (Mechanisms, Outcomes, Mobilization of Maternally Led Interventions in Newborn Care) and the Canadian Premature Babies Foundation (CPBF).
Building on the Presence Study, the toolkit translates key findings and lived experiences into 13 consensus recommendations.
It articulates practical guidance that hospitals and care teams can use to strengthen policies, improve consistency, and place families at the center of care.
The ultimate goal is to support adopting a true family-centered approach that recognizes families as essential partners in care, strengthens their role at the bedside, and prioritizes both infant outcomes and family well-being.
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Family-Centered Care Taskforce Spring Newsletter |
FCC Taskforce Spring 2026 Newsletter includes several articles: "Supporting Families in Grief," "Trust and Engagement in the AI Era: Advancing FCC Through Responsible Innovation," "EDIBJ in the NICU: Equality vs. Equity," and the "Trauma Informed Care Corner." | | | | |
Bluebird Way Foundation Offering Narrative Medicine Workshops |
The Bluebird Way Foundation is offering a series of three workshops to teach narrative medicine through storytelling. The sessions include: Identity, Narrative Medicine though Disney Music, and Understanding Complex Care through Narrative Medicine. The workshop series starts in July and runs through December. 2026 Canadian readers of Pinwheel Pages are encouraged to apply. Applications are open until July 31, 2026.
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Healthcare Excellence Canada Launching a Cultural Safety Collaborative |
Racism experienced by First Nations, Inuit and Métis in healthcare is a critical patient safety issue. It leads to harm, mistrust, inequitable access to care and worse health outcomes. Healthcare Excellence Canada is offering a collaborative to support healthcare organizations to address systemic racism and advance culturally safe care. The collaborative will run for two years starting in September.
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Effect of TeamBirth on Patient Trust and Autonomy |
Ariadne Labs reported recently that TeamBirth has been implemented in more than 300 hospitals in the United States with the goal of improving communication and teamwork during childbirth care.
It is now expanding globally and has been adapted for a Swedish context.
Ariadne Labs’ recent study explored how participation in TeamBirth huddles — structured, team-based communication practices during labor — relates to patients’ experiences of trust and autonomy in decision-making. Analyzing survey data from more than 6,500 patients who gave birth in Oklahoma hospitals between 2022 and 2024, they found significantly higher scores on measures of trust and autonomy compared with those who did not, and this was consistent across all racial and ethnic groups.
Isabel Griffith, MPH, first author of the article “Effect of TeamBirth on Patient Trust and Autonomy During Childbirth in Oklahoma” was the recipient of the 2026 Nancy K. Lowe Scholarly Writing Award that recognizes excellence in scholarship and writing.
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Alzheimer's Disease Fact and Figures Special Report
The Alzheimer's Association published the 2026 Alzheimer’s Disease Facts and Figures, a statistical resource for U.S. data related to Alzheimer’s disease, the most common type of dementia. This year’s edition features an extensive section with data on Caregiving. In addition, a special report examines how Americans understand, prioritize, and act on the desire to sustain brain health across the lifespan.
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2026 IPFCC PINWHEEL SPONSORSHIP
Be a Catalyst for Change: Become a Pinwheel Sponsor Today
Your contribution as a Pinwheel Sponsor does more than support an organization—it powers the transformation of healthcare. By investing in IPFCC, you directly fuel the development and sustainability of essential partnerships with patients and families.
Your support demonstrates an unwavering commitment to patient- and family-centered care on a global stage, providing your organization with valuable national and international visibility. Join us in elevating the voices that matter most and leave a lasting, profound impact on the health care community. Donate today to lead the change.
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Thank you to our sponsors! |
PFCC.Connect
University Health
Kaiser Permanente
Health System
Vanderbilt University Medical Center
Hospital/Organization
Akron Children’s Hospital
American College of Radiology
Children’s Mercy Kansas City
Children’s Specialized Hospital
IWK Health
Luminis Health Anne Arundel Medical Center
MHA Keystone Center
Moffitt Cancer Center
Penn State Health Milton S. Hershey Medical Center
Tallahassee Memorial Healthcare
Thunder Bay Regional Health Sciences Centre
University of Iowa Stead Family Children's Hospital
University of New Mexico Children’s Hospital
University of Miami Health System
Wellstar MCG | | | | | | |
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Institute for Patient- and Family-Centered Care
PO BOX 6397
McLean, VA 22106-9998 | |
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