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News Flash Archive 2009-2014

News Flash

Check this page to learn more about timely events or happenings that may be relevant to people interested in the delivery of patient- and family-centered care.

American Academy of Pediatrics

From the American Academy of Pediatrics: Patient- and Family-Centered Care of Children in the Emergency

Providing patient- and family-centered care to children in the emergency department setting presents many opportunities and challenges. This revised technical report draws on previously published policy statements and reports, reviews the current literature, and describes the present state of practice and research regarding patient- and family-centered care for children in the emergency department setting as well as some of the complexities of providing such care. Read More...

Association of American Medical Colleges

Read Viewpoint: Better Together: Partnering With Families Across the Continuum of Care by Beverley H. Johnson, President and CEO, IPFCC, in the latest issue of the Association of American Medical Colleges (AAMC) Reporter, October 2014.

Stop In the Name of Germs!

Check out Georgia Regents Health System's video, "Stop In the Name of Germs!" about the importance of hand hygiene.

Hear Dominick Frosch, AIR Researchers, and stakeholders involved in the creation of the Roadmap for Patient and Family Engagement in Healthcare Practice and Research discuss its origins and how it can be adopted. Panelists include Susan Frampton, president of Planetree, and Pat Mastors, president and co-founder of the nonprofit Patient Voice Institute, among others. Register.

Privileged Presence: Personal Stories of Connections in Health Care

The new 2014 edition of Privileged Presence: Personal Stories of Connections in Health Care, authored by Liz Crocker, Vice President of IPFCC, and Bev Johnson, President and Chief Executive Officer of IPFCC, is now available.

This updated edition is a collection of more than 65 stories that reflect health care experiences from the points of view of compassion, communication, collaboration, respect, and dignity...or their absence. This new edition uses real-world experiences recounted by patients and their families, nurses, doctors, and other health care professionals to illustrate what works and what doesn't, what increases or diminishes an individual's sense of confidence and well-being. Tools for improving care and creating partnerships are included in the book.

Call for Applications: 2015 Healthy Tomorrows Partnership for Children Program

The Healthy Tomorrows Partnership for Children Program (HTPCP) is a cooperative agreement between the federal Maternal and Child Health Bureau (MCHB) and the American Academy of Pediatrics (AAP). Federal grants of $50,000 per year for up to five years are awarded through the program to support community-based child health projects that improve the health status of mothers, infants, children, and adolescents by increasing their access to health services.

Closing date for applications: October 14, 2014. Learn more.

Download a Grant Application Package

International Society for Quality in Health Care

The International Society for Quality in Health Care (ISQua) is now accepting nominations and applications from individuals to join the Advisory Forum on Partnership with Patients (AFPP). Members will provide the ISQua Board and its sub committees with information, advice, and insights on the patient perspective in relation to safety and quality in health care. Closing date for applications is August 30, 2014. Learn more...

Health Quality Ontario

Health Quality Ontario extends deadline for abstract submission for Health Quality Transformation 2014. Learn more...

National Center for Medical Home Implementation

The Association of Maternal & Child Health Programs (AMCHP ~ Call for Applications for its Family Scholars Program

The Association of Maternal & Child Health Programs (AMCHP) is a national resource, partner, and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs.

The AMCHP Family Scholars Program (FSP) provides an opportunity to identify, encourage, and train family leaders. This 10-month program strives to provide Family Scholars with the knowledge and resources to enhance their development as family leaders, and to promote policies, programs, and systems at the national, state, and/or local-levels.

Learn more and access the application. Due date: August 7, 2014.

The Beryl Institute

Applications Now Being Accepted for The Beryl Institute's Patient Experience Research Grants and Scholar Programs.

Applications are available for The Beryl Institute's fifth annual Patient Experience Grant Program and the third annual Institute Scholar Program. These programs encourage and support research into the value of improving the patient experience before, during, and after care, how it impacts customer service and the influence of culture on experience.

The deadline to apply for each program is September 26, 2014. Recipients will be announced in October 2014. Read more...

Association for Patient Experience

Check out the first issue of the Journal of Patient Experience, (JPE) affiliated with by the nonprofit Association for Patient Experience.

JPE is designed to give voice to patient and providers. A peer-reviewed journal, it "aims to cover a wide scope comprising new technologies, processes, methods, research, case studies, best practices, applications and perspectives in the emerging field of patient experience."

JPE is accepting submissions until July 14 for its second issue.

Patient Experience Journal

Check out the first issue of the Patient Experience Journal, PXJ, published in association with The Beryl Institute. The Patient Experience Journal is designed to share ideas and research, and reinforce key concepts that impact the delivery of service, safety, and quality, and their influence on the experience of patients and families across health care settings.

PXJ is now accepting submissions for its Call for Papers for its second issue.

Symposium for Leaders in Healthcare Quality

The Symposium for Leaders in Healthcare Quality (SLHQ), a new forum of the American Hospital Association (AHA), brings together quality improvement professionals committed to delivering safe, effective, efficient, equitable, timely, and patient centered care. In July 2014, SLHQ will host the 2nd Annual Quality & Safety Roadmap meeting, marking the first in-person gathering for SLHQ members. The Roadmap meeting will combine professional development and net-working opportunities as participants focus on identifying and spreading effective practices for partnering with patients and families to eliminate harm across the board.

Funding is available for Patient/Family Advisors to attend the 2nd Annual Quality & Patient Safety Roadmap: Eliminating Harm Across the Board July 19, 2014 to July 22, 2014, San Diego, CA. Application deadline: June 13, 2014. Learn More...

Caregiver Action Network

The Caregiver Action Network is seeking best practices in patient and family engagement. Nominate hospital staff, patients and caregivers, and hospital/healthcare leadership. Deadline May 23, 2014. Learn more...

Celebrate National Nurses Week ~ May 6-12, 2014

National Nurses Week 2014

National Nurses Week begins on May 6th and ends on May 12th, Florence Nightingale's birthday. This year the theme is Nurses: Leading the Way. The American Nurses Association (ANA) is offering a free webinar, Transforming Health Care Through Nursing Leadership, Wednesday, May 7 at 1 p.m. EDT, exploring the transformative roles nurses play as contributors and innovators in the health care profession. ANA is also offering a free National Nurses Week Resource Toolkit.

Partnership for Patients

Thanks to the Partnership for Patients contractor, Weber Shandwick, for allocating resources for scholarships for a group of patient and family leaders/advisors from US hospitals to attend IPFCC's Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar held March 31-April 3, 2014, in Burlingame, California. One of the requirements for those receiving an honorarium included writing a blog entry sharing their insights and experiences from the training.

Thanks to all who shared their insights and experiences from attending the seminar! Read the diverse postings...

Family-Centered Care for the Newborn ~ The Delivery Room

Just announced: April 2014 release of Family-Centered Care for the Newborn ~ The Delivery Room and Beyond by Terry Griffin and Joanna Celenza. This book provides a comprehensive guide to family-centered care for healthy, ill, or preterm newborns.

Strategies offered include how to promote implementation of a family-centered environment in the delivery room or NICU, practical approaches to communicating with families before and after delivery, understanding the power of language used with and about families, and tips on policy review to facilitate a culture of family-centered care. The book also discusses how to welcome families during interdisciplinary rounds and nurse hand-offs, and ways to support families during procedures and resuscitation.


Promising Care: How We Can Rescue Health Care by Improving It

Promising Care: How We Can Rescue Health Care by Improving It is now available. The book includes a collection of Dr. Donald M. Berwick's landmark speeches—delivered at IHI's annual National Forum on Quality Improvement in Health Care from 2003-2012. Each speech is accompanied by a brief commentary by a prominent figure in health care, policy, or politics, bringing a unique perspective to that particular speech.

The following is part of the commentary by Bev Johnson, IPFCC's President and CEO, on Dr. Berwick's Yale School of Medicine Graduation Address of May 24, 2010: "Don Berwick challenged the graduates to 'unlock the door' of policy and rules to open health care to participation by patients and presence is a theme woven throughout the stories in Dr. Berwick's speech." Bev concludes by noting, "Now is the time to change the concept of families as visitors and to move toward respecting and encouraging families in their essential caring roles and recognizing them as allies for quality and safety."

Read more about Dr. Berwick's book...

Patient-Centered Primary Care Collaborative is holding a web-based National Briefing on Integrating Peer Support in Primary Care on Thursday, February 27, 2014 at 1-2 pm EST. Read more...

National Center for Medical Home Implementation

The American Academy of Pediatrics National Center for Medical Home Implementation is featuring a "how to" Webinar Series on Fostering Partnership and Teamwork in the Pediatric Medical Home. The last webinar in the series is: Starting and Supporting Family Advisory Groups on Thursday, April 24, 2014 (11am-noon CST). If you missed the earlier webinars in the series, Implementing Team Huddles and Enhancing Care Partnership Support, you may listen to archived recordings online. Read more...

The American Institutes for Research (AIR) is collecting patient and caregiver opinions about desired patient engagement efforts in health care. Participate in this brief survey created with the help of patients and caregivers.

The 6th International Conference on Patient- and Family-Centered Care Partnerships for Quality and Safety

Thank you to all who submitted abstracts for The 6th International Conference on Patient- and Family-Centered Care. IPFCC is proud to report that we received a record number of abstracts! The abstract review process has begun and you can expect to receive notification about acceptance status in early December. We look forward to offering an exceptional conference program. For questions, contact us at

Hospital Association-McKesson Quest for Quality Prize Recognizes Hospital Leadership and Innovation in Quality Improvement and Safety

American Hospital Association-McKesson Quest for Quality Prizes

The winners of the American Hospital Association-McKesson 2013 Quest for Quality Prizes were announced on July 22, 2013, recognizing four U.S. hospitals for their leadership and innovation in quality improvement and safety. The 2013 winner is Beth Israel Deaconess Medical Center in Boston. Franklin Woods Community Hospital-Johnson City, Tennessee is the 2013 finalist. Vidant Medical Center, Greenville, North Carolina and St. Mary's Hospital-Centralia, Illinois each received a Citation of Merit. Read more about each of these hospitals and what makes them leaders and innovators in quality improvement and safety...

AHRQ Releases Guide to Help Hospitals Increase Patient and Family Engagement to Improve Quality and Safety of Care

Agency for Healthcare Research and Quality (AHRQ)

The Agency for Healthcare Research and Quality's (AHRQ) new online resource gives hospitals four evidence-based strategies to engage patients and families in their care. The field-tested strategies outlined in this new Guide to Patient and Family Engagement in Hospital Safety and Quality can help hospitals make care better and safer by bridging the communication gaps among patients and families and their health care providers.

"Many of the errors we see in health care stem from communication problems," said AHRQ Director Carolyn M. Clancy, M.D. "That's why we developed this resource, to give hospitals practical, evidence-based information to improve communication on the front lines of health care-and ultimately keep patients safer."

The guide provides four evidence-based strategies—including tools and resources—that hospitals can use to implement patient- and family-centered care practices. The strategies describe how patients and families, working with hospital staff, can:

  • Be advisors;
  • Promote better communication at the bedside to improve quality;
  • Participate in bedside shift reports; and
  • Prepare to leave the hospital.

AHRQ will work with the HHS Partnership for Patients, which has made focusing on patient and family engagement a priority for its 26 hospital engagement networks and other stakeholders, to share the guide with hospitals across the country.

Read AHRQ's press release.

National Association of Public Hospitals and Health Systems Changes its Name

The National Association of Public Hospitals and Health Systems has changed its name to America's Essential Hospitals. It continues as the "national association and champion for hospitals and health systems dedicated to high-quality care for all, including the most vulnerable. We support members with advocacy, policy development, research, and education for hospital leadership."

New Resource Showcases Provider and Patient/Family Partnerships

The American Academy of Pediatrics's National Center for Medical Home Implementation releases a monograph, Positioning the Family and Patient at the Center: A Guide to Family and Patient Partnership in the Medical Home. This report features family-centered medical home strategies from 17 pediatric primary care practices from across the country. The monograph—which includes case studies, as well as a literature review and a discussion of policy implications—may serve as a resource to pediatricians who are considering implementing the patient- and family-centered medical home model in their practices.

"We were prepared to see the case studies featured in this monograph document practice improvements such as greater use of health information technology, enhanced access to medical professional staff outside regular office hours, and some form of feedback capturing patient/family experience with care," said Nora Wells, co-director of the National Center for Parent-Professional Partnerships in Family Voices. "What we did not expect to see, however, is the amazing breadth and depth of the collaborative efforts these practices have in place."

The monograph is available online.

Lyfechannel's winning "my family" app is now available for free download.

The app, which focuses on the preventive care benefits and services covered by the Affordable Care Act, will empower individuals to take greater action to improve and maintain their family's health.

New Appointments to the Saskatchewan Board of Health Quality Council

The Saskatchewan Health Quality Council approved the appointment of two internationally recognized health care leaders to the Board of the Health Quality Council. Effective March 27, 2013, Elizabeth Crocker, Vice President of the board for the Institute for Patient- and Family-Centered Care, and are members of HQC's Board of Directors.

HQC's Chair, Dr. Susan Shaw, said Saskatchewan will benefit from the wisdom and experience of the new board members. "Mike Rona and Elizabeth Crocker are very well-known and respected in the global health care community," said Shaw. "Their expertise in Lean and patient and family centred care, respectively, will strengthen our ability to be a key support and leader in our system's transformation efforts."

IPFCC's very own Julie Moretz will be leaving her position with us to become the associate vice-chancellor of patient- and family-centered care at the University of Arkansas for Medical Sciences beginning in May. Her unique perspective will help University of Arkansas for Medical Sciences advance the concept and implementation of patient- and family-centered care to help realize their goal of becoming a leader in the field. We are sad to see Julie go but wish her the best of luck in her new position! Read more...

After 27 years as a world leader in advocating for patient-centered care, Picker Institute will cease operations in early 2013. The Picker Institute website will be hosted by the Institute for Patient- and Family-Centered Care. Read more...

Sorry Works! Launches campaign to educate patients and families. Read more...

Pinwheel lapel pinThis Pinwheel lapel pin is a perfect way to recognize patient and family advisors and other patient- and family-centered care champions. The .75" cloisonné lapel pin is two-tone blue, encased in polished silver, with an 8mm post and butterfly clutch. $10


Institute's Emblem of Commitment

Institute for Patient- and Family-Centered Care Pinwheel Sponsors have the opportunity to designate their affiliation with the Institute by posting the Institute's Emblem of Commitment on their own website. This emblem lets others know that the Sponsor's organization is committed to partnering with patients and families to improve safety and quality. Read more about the Institute's Pinwheel Sponsors Program...

Partnership for Patients (PfP) Patient and Family Engagement Master Class, "Hospital has One or More Patient(s) who Serve on a Geoverning and/or Leadership Board as a Patient Representative" will be held on November 25th from 3:00 - 4:00 p.m. ET Read more

Health Research & Educational Trust (HRET), the not-for-profit research and education affiliate of the American Hospital Association (AHA), is conducting a national survey of 2,000 hospitals regarding patient and family engagement funded by the Gordon and Betty Moore Foundation. There are a number of questions on the survey related to PFACs and patient and family advisors. Selected hospitals need to return the survey by November 4th. Please check with the key leaders of your hospital to find if the CEO received the survey and if it has been returned to HRET. If you have any questions about the survey please contact:

Becca Moran
Program Manager
Health Research & Educational Trust
155 N. Wacker Drive, suite 400
Chicago, IL 60606
office: 312.422.2659
fax: 312.422.4568

The Gordon and Betty Moore Foundation is funding a series of awards to Early Career Investigators who are participating in innovative, translational research and who have "demonstrated a high level of interest in the field and the potential for making a significant contribution toward advancing patient and family engagement." Letters of Intent are due October 31, 2013. Learn more.

Harvey Picker Center of Innovation and Applied Research In Long Term Care announces the 2013/2014 Applied Research Program —
Letters of Intent due July 15, 2013

Harvey Picker Center of Innovation Applied Research Program provides annual grants to support research of innovative projects which are designed to facilitate successful initiatives that will advance the development of person-centered cultures and implementation of person-centered care across the spectrum of long-term care settings and services.

This program is now seeking proposals that aim to advance the development of exceptional Person-Centered Long-Term Care Leadership and the deployment of Innovative Person-Centered Long-Term Care Practices. Across these two major topic areas, some sub-topics of interest are listed on the website. Proposals addressing other issues of critical importance, beyond these sub-topics, are welcome. The expected outcome of a grantee's project will be a demonstration, including a robust dissemination plan, of the measurable effects, affordability and sustainability of the effort to advance person-centered cultures and/or the implementation of person-centered care. The project must be consistent with one or more of the Planetree or Picker Principles of Patient-Centered Care.
Letters of Intent due July 15, 2013

AHA-McKesson Quest for Quality Prize® 2014—Call for Nominations

The goals of The American Hospital Association-McKesson Quest for Quality Prize® are to raise awareness of the need for a hospital-wide commitment to highly reliable, exceptional quality, patient-centered care; reward successful efforts to develop and promote a systems-based approach toward improvements in quality of care; inspire hospitals to systematically integrate and align their quality improvement efforts throughout the organization; and communicate successful programs and strategies to the hospital field.

One winning hospital will receive $75,000; up to two finalists will receive $12,500 each. Other site-visited organizations (up to four) may be named Citation of Merit honorees. All U.S. hospitals are eligible for the AHA-McKesson Quest for Quality Prize®.

Nominations can be submitted through October 13, 2013.

The Purpose Prize®, now in its seventh year, is the nation's only large-scale investment in people over 60 who are combining their passion and experience for social good. The Prize awards $100,000 each to five people in encore careers creating new ways to solve tough social problems.

See what's possible in the second half of life by learning more about how previous Purpose Prize winners, all in their encore careers, solve critical problems in education, health care, the environment and more >

Nominations are now open for the 2013 Purpose Prize, which will award up to $100,000 to social innovators 60 and older. You may nominate a colleague, a friend, even yourself — anyone whose creative endeavors in the second half of life are making a big difference to society. You can find answers to the most frequently asked questions about The Prize here. The deadline for submissions is April 4, 2013.

Office of the National Coordinator for Health Information Technology (ONC) is seeking public input to update the Federal Health IT Strategic Plan.

This Plan outlines goals and strategies for the nationwide shift to electronic health records and information exchange, and for creation and spread of new health information technologies. On this site, you can learn about these issues and be part of the public discussion that will shape the new Plan. From now through May 9, 2013, the topic for discussion is Consumer eHealth. Whether you're a patient, consumer, provider, insurer or IT developer, you should have a voice in this process! Read More...

PCORI—Patient-Centered Outcomes Research Institute—Is seeking applications for four advisory panels: Addressing Disparities; Assessment of Prevention, Diagnosis, and Treatment Options; Improving Health Care Systems; and Patient Engagement. Applications accepted through March 4, 2013. Read More...

PCORI—Patient-Centered Outcomes Research Institute—approved 25 awards totaling $40.7 million, to fund patient-centered comparative clinical effectiveness research projects. Read More...

Institute for Patient- and Family-Centered Care celebrates 100th webinar broadcast this month! Learn more about Institute webinars.

Lucile O. Hanscom, Executive Director of the Picker Institute, receives Planetree's 2012 Patient-Centered Care Visionary Leadership Award. Read More...

IOM Champions patient- and family-centered care in the newly released report: Best Care at Lower Cost

Engaged patients are central to an effective, efficient, and continuously learning system. Clinicians supply information and advice based on their scientific expertise in treatment and intervention options, along with potential outcomes, while patients, their families, and other caregivers bring personal knowledge on the suitability—or lack thereof—of different treatments for the patient's circumstances and preferences. Both perspectives are needed to select the right care option for the patient. Communication and collaboration among patients, their families, and care teams are needed to fully address the issues affecting patients. Read More

Patients at the Crossroads: Reconciling Patient-Centered Care, Evidence-Based Practice, And Integrative Medicine

Patients at the Crossroads: Reconciling Patient-Centered Care, Evidence-Based Practice, And Integrative Medicine ~ A two-day symposium hosted by the Samueli Institute, in Alexandria, Virginia on November 8-9, 2012. Engage in rich, solutions-based dialogue with key stakeholders from civilian, veterans and military settings including administrators, clinicians, patients, families, researchers and thought leaders. Listen as experts share their experiences, explore commonalities and develop a deeper understanding of the characteristics of patient-centric and evidence-based care.

Call the Samueli Institute for information about group discounts available during the Early Bird Registration, now open until October 15th.

Read More

Office of the National Coordinator for Health Information Technology

The Office of the National Coordinator for Health Information Technology (ONC) is at the forefront of the administration's health IT efforts and is a resource to the entire health system to support the adoption of health information technology and the promotion of nationwide health information exchange to improve health care. Today's technology is converting the information in our paper records into an electronic format which allows you and your doctors to have access to your health information when and where it's needed. Watch this short video and learn more about the benefits of health IT and how online, secure access to your health record can help make sure you get the best care.

The Beryl Institute announces its third annual Patient Experience Grant Program and the new Institute Scholar Program.

The grant program is intended to encourage and support research into the:

  • Value of focusing on the patient experience before, during and after care (e.g., ROI, satisfaction or quality outcomes)
  • Impact of service efforts on the healthcare experience
  • Influence of culture on the patient experience, service, and outcomes
  • Integrated review of key factors that support positive healthcare experiences

Over 400 photos of the International Conference can now be seen at Please tag yourself and share these pictures with all you know. International Conference photos are also posted on Facebook.

The National Committee on Quality Assurance (NCQA) is seeking comments on proposed Specialty Practice Recognition (SPR) 2013 standards, which are slated to be released in March 2013. Reviewers are asked to submit their comments in writing via the public comment Web site by 5pm (Eastern) on Friday, July 6, 2012.

The U.S. Agency for Healthcare Research and Quality's Healthcare 411 audio news source provides practical health care information, research findings, and data to help consumers, health providers, health insurers, researchers, and policymakers make informed decisions about health care issues.

Check out the U.S. Department of Health and Human Services (HHS) new training simulation, Partnering to Heal: Teaming-Up Against Healthcare-Associated Infections. It is a great training tool for use by health professionals, students, patients, and their families to learn more about patient safety concepts.

Participants can choose to play any of five different roles—four health care professionals as well as a family member—and make decisions based on the situations each encounters. Players can then see how those decisions play out for each of the characters. This simulation is intended to encourage different audiences to understand the goal of preventing infections and to make the personal commitment to prevent Healthcare-Associated Infections (HAIs). Learn more about the HHS Initiative to Prevent Healthcare-Associated Infections.

Check out what the Institute for Patient-Centered Design is doing at the HealthCare Design Conference, Nov 3-6, 2012, Phoenix, AZ: The Patient Empowered Room Design Competition, The Patient Experience Simulation Lab, and more...

The Institute for Patient-Centered Design is a non-profit organization established to improve the environment of care by addressing the needs of patients through design. Its mission is to contribute to the quality of healthcare delivery through patient-centered design advocacy, education, and research.

ESCAPE FIRE: The Fight to Rescue American Healthcare

The awarding winning film, ESCAPE FIRE: The Fight to Rescue American Healthcare is being released October 5, 2012. Learn More


The Patient-Centered Outcomes Research Institute (PCORI) will host a workshop October 27-28 in Washington, D.C., to bring together consumers, patients, caregivers, advocacy groups, researchers, and other stakeholders in an effort to start building a patient-centered research community. The event is designed to identify promising models of patient engagement in research and help these communities start working together to identify research topics that will improve patient care and outcomes. Workshop attendance is limited to 150 people; 75% of workshop invitations will be reserved for patients, caregivers and organizations representing them. PCORI is prepared to support travel and related expenses for invited attendees. For those unable to attend, PCORI will provide a free, interactive webcast, open to the public. Read More

Open Door Forum: Seeking Input on ACO Educational Opportunities

The Center for Medicare and & Medicaid (CMS) Innovation Center is seeking input from interested stakeholders and the public on how to design educational opportunities for providers interested in participating in Accountable Care Organizations (ACOs) or other coordinated care initiatives.

The Affordable Care Act requires the Innovation Center to consult with clinical and analytical experts with expertise in medicine and health care management and other interested parties when developing payment and service delivery models for testing. An Open Door Forum on this topic has been scheduled for 1 pm ET on Monday, August 27, 2012.

For more info and details on how to participate: Open Door Forum: Seeking Input on ACO Educational Opportunities

Bronson Methodist Hospital today was named a recipient of the 2012 HealthGrades Outstanding Patient Experience Award™ by HealthGrades, the leading provider of information to help consumers make an informed decision about a physician or hospital. Bronson is the only hospital in southwest Michigan to be named an Outstanding Patient Experience award recipient for 2012. According to HealthGrades, 80% of patients treated at the nation's best-performing hospitals would definitely recommend the hospital compared to only 53% of patients who received care from the poorest-performing hospitals. Read More...

After 31 years of supporting Caring Attitudes as the focus of the Health Care Program, The Arthur Vining Davis Foundations (AVDF) have made the inaugural $100,000 Award for Leadership in Advancing Caring Attitudes to Commonweal's Institute for the Study of Health and Illness (ISHI).

For more information on the Award, the AVDF, and ISHI, please see the News Release.

Bev Johnson, Institute for Patient- and Family-Centered Care President/ CEO unanimously elected to Board of Directors of the Patient-Centered Primary Care Collaborative (PCPCC). Congratulations Bev!

Improving the Medical Home Through the Use of Health Information Technology-A Fact Sheet for Families
The fact sheet can be found on the Health Information Technology (HIT) page of the NCMHI Web site and is also housed on the AAP's family/consumer site,, under the title Technology to Improve Your Child's Medical Home.

Donald M. Berwick, MD, MPP, co-founder and former President and CEO of the Institute for Healthcare Improvement (IHI), and recent administrator of the Centers for Medicare and Medicaid Services (CMS), and Steven Johnson, an award-winning author on innovation and the intersection of science, technology, and personal experience, who was recognized as one of the Top Ten Brains of the Digital Future, will speak at Institute's International Conference. Read about other keynote speakers...

Check out Jim Conway's recent post on the Health Care for All blog: Patient Safety Week 2012: Informing the Journey, Not Changing the Destination. Mr. Conway discusses not only the destination—"high-quality, safe, and continuously improving health and healthcare centered on, and in partnership with, the patient, the family, the public, and their community" but also discusses related initiatives, including a study by the Lucian Leape Institute of the National Patient Safety Foundation to begin April. Read Jim Conway's post..

Scholarships available to attend the 2012 TEDMED meeting, and live simulcasting available for medical students, medical schools, teaching hospitals and health systems, academic and scientific societies, and health and medicine non-profits.

TEDMED is a for-profit organization whose mission is to advance health and medicine through innovation. At TEDMED's 3 1/2-day conference, April 10-13, 2012, "thinkers and doers, from 300 medical and nonmedical disciplines... come together for intellectual cross-pollination." Learn more...

SPEAKERLINK™ is free to register and use until April 1, 2012. After that time, SPEAKERLINK™ will charge a modest annual membership of $9.95 to host your profile. Speakers have a variety of backgrounds from patients with experience in engaging hospitals, to professional caregivers, to health information technology innovators. The variety of backgrounds, experience levels, and areas of expertise makes SPEAKERLINK™ an excellent resource for stories to improve healthcare. Read More...

Building Leadership to Improve Patient Based Care

The seminar, held in Sydney in July 2011, was a great success. The seminar was jointly hosted by the Clinical Excellence Commission (CEC) and the Australian Commission on Safety and Quality in Health Care. This program is designed to assist in building leadership skills to face the challenge of shaping organisations to support improved patient care experience. Read More...

Don Berwick, a Harvard pediatrics and health policy professor who is one of the nation's leading champions of high-quality, patient-centered care, leaves the Centers for Medicare & Medicaid Services (CMS), after 17 months. Dr. Berwick receives high marks on his tenure there. Read More...

Guidelines for Poster Presentations for the 5th International Conference just added

Poster presentations should clearly illustrate the core concepts of patient- and family-centered care and emphasize collaboration with patients and families.

Congratulations to Bev Johnson, President and CEO of the Institute. At the 2nd Annual Dorland Health People Awards on October 20, 2011, Bev received an honorary award for her leadership in the area of patient- and family-centered care. Presented at the National Press Club, in Washington, DC, these awards honor "excellence and dedication among healthcare professionals" and seek to recognize "those who provide outstanding patient care and system improvements across the diverse healthcare landscape."

The Institute is proud to announce the results of the 2011 Salary Survey of Patient and Family Leaders in Paid Positions. The Institute highlighted the survey results at its Hospitals and Communities Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar in Madison, Wisconsin, November 7-10, 2011, in the session, Creating Paid Positions for Patient and Family Leaders: Key Considerations.

The survey responses offer a glimpse into the patient- and family-centered care community, as well as current attitudes and trends for engaging patients and family leaders as paid employees. Results reflect the importance of bringing patients and families in as part of the health care team to represent the voices of patients and families in day-to-day operations. Read More...

The new Multi-professional Patient Safety Curriculum Guide released in October 2011 by WHO Patient Safety assists universities and schools in the fields of dentistry, medicine, midwifery, nursing and pharmacy to teach patient safety. It also supports the training of all health-care professionals on a number of priority patient safety concepts to improve learning about patient safety. Read More...

October 1, 2011 marked the exciting one-year anniversary of state-mandated Patient and Family Advisory Councils (PFACs) in all Massachusetts hospitals. The same state law that requires the establishment of these PFACs also requires each Massachusetts hospital to publish an annual report summarizing the work of the hospital's council. Many of the hospitals have posted on their websites either their annual PFAC reports, other information about their PFACs, or both. Read More...

The Institute for Healthcare Improvement (IHI) Open School offers a range of on-line courses on topics such as patient- and family-centered care, quality improvement, patient safety, and leadership. IHI just announced a new course: Patient- and Family-Centered Care 101: Dignity and Respect. Continuing Education Credits are available. The Course is now live on the IHI website.

The Patient-Centered Outcomes Research Institute (PCORI) announced the Pilot Projects Grant Program. PCORI intends to commit up to $26 million to this program-$13 million per year for two years-in support of approximately 40 awards.

The purpose of the Pilot Projects Grants Program is to:

  • Inform PCORI's ongoing development and enhancement of national priorities for patient-centered outcomes research (PCOR);
  • Support the collection of preliminary data that can provide a platform for an evolving research agenda; and
  • Support the identification of research methodology to advance PCOR.

As part of PCORI's commitment to include patient and stakeholder perspectives throughout the research process, the organization is encouraging applications that collaboratively bring together experienced researchers and individuals or organizations that represent patients, caregivers and the broader health care community.

According to the announcement, "PCORI is interested in the development of research methods, patient-oriented outcomes instruments, patient-provider communication and other decision-making strategies, building collaborative research teams with stakeholders, translating research findings into clinical practice, stakeholder engagement, and research agenda setting strategies that can be used in future comparative effectiveness research."

Letters of intent for must be received by November 1, 2011, and applications must be received by December 1, 2011.

Oregon established the Oregon Patient-Centered Care Primary Care Home Program, and convened a multi-disciplinary implementation task force that includes patient and family advisors. Read More...

Kathleen Sebelius, Secretary of Health and Human Services, visited University Health Systems of Eastern Carolina/Vidant Health (UHS)—an Institute Pinwheel Sponsor. Secretary Sebelius' visit was to support the Partnership for Patients, a nationwide effort to improve health care quality. UHS, which "engages patients in meaningful partnerships from the bedside to the board room" is a leader in patient safety. UHS attributes its gains in reducing patient harm and improving safety-such as reducing hospital-acquired infections by 50% over two years-to several factors, including its "leadership's firm commitment to improving quality, patient safety and patient experience; embracing transparency and involving patients and families in system decision-making." See video clip.

Margaret Murphy named as Expert Lead, Patients for Patient Safety, World Health Organization. Learn more about Margaret Murphy and more about other WHO Patient Safety Expert Leads...

Picker Institute Always Events℠ Challenge Grant Recipients Announced!

The Picker Institute has determined that an operating principle focused on the concept of Always Events℠ can be implemented to drive the health care system to become more patient-centered. In contrast to the well-known Joint Commission "never events" patient-focused Always Events are aspects of the patient and family experience that should always occur when patients interact with healthcare professionals and the healthcare delivery system. Challenge Grants of $50,000 were awarded on 3/18/2011 to 20 winning applicants. To read about the recipients...

Institute for Healthcare Improvement: Achieving an Exceptional Patient and Family Experience of Inpatient Hospital Care

Just released, Achieving an Exceptional Patient and Family Experience of Inpatient Hospital Care, is one of the IHI Innovation Series White Papers.

The Institute for Healthcare Improvement conducted an in-depth review of the research, studied exemplar organizations, and interviewed experts in the field, in response to growing interest from the hospital community in better understanding and improving the experience of patients and their families during hospitalization. IHI sought to identify the primary and secondary drivers of exceptional patient and family inpatient hospital experience (defined as care that is patient-centered, safe, effective, timely, efficient, and equitable), as measured by the Hospital Consumer Assessment of Healthcare Providers and Systems (HCAHPS) survey's "willingness to recommend" the hospital.

The project identified five primary drivers of exceptional patient and family inpatient hospital experience of care:

  • leadership;
  • staff hearts and minds;
  • respectful partnership;
  • reliable care; and
  • evidence-based care.


Balik, B., Conway, J., Zipperer, L., & Watson, J. (2011). Achieving an exceptional patient and family experience of inpatient hospital care. Cambridge, MA: Institute for Healthcare Improvement. (Available on

Bedside Nurse Change of Shift Report Video

The Institute for Patient- and Family-Centered Care just released a new video, Bedside Nurse Change of Shift Report. This training clip presents two nurses and an adult patient participating in an actual bedside nurse change of shift report at Perham Memorial Hospital and Home in Perham, MN. Read More....

Families as Educators: Guidance for Implementation

The Initiative for Pediatric Palliative Care (IPPC) is a broad-based collaborative initiative of several organizations and a number of leading children's hospitals. The IPPC works to educate and improve quality of care to enhance family-centered care for children living with life-threatening conditions. The IPPC offers a variety of free resources on its website, including it's curriculum, and a variety of tools.

IPPC educational retreats introduce interdisciplinary teams—including family members—from a variety of health care settings to the IPPC curriculum and prepare the teams to lead educational and organizational change. The retreats incorporate a significant number of family members to participate as co-teachers and co-learners with health care professionals. Families as Educators: Guidance for Implementation—available as a free download—provides practical guidance to help other institutions understand this model and adapt it to their own settings. The Kenneth B. Schwartz Center supported the "Families as Educators" component of IPPC with four years of funding.

NEW NICQ 2007 eBook available

The Vermont Oxford Network new eBook entitled NICQ 2007: Improvement in Action is now available. This eBook is the culmination of NICQ 2007, a two-year improvement collaborative involving teams of neonatal professionals and families representing 46 hospitals in North America. The goal is to consistently provide care that is family-centered, safe, effective, equitable, efficient, timely, and socially and environmentally responsible. The first chapter, Advancing Patient- and Family-Centered Newborn Intensive Care, is co-authored by James Conway, Joanna Celenza, and the Institute's Senior Policy and Program Specialist, Marie Abraham. This entire book is available to download, as are individual chapters. Read more...

Veterans Benefits webinar

As more and more Service members transition out of the military as conflicts wind down, many do not know about their eligibility for VA benefits. You could make a difference by referring Veterans to VA to make sure they get the benefits they earned.

Register today for the Department of Veterans Affairs (VA) sponsored Veterans Benefits webinar, and encourage colleagues to do the same, so you can gain a basic understanding of VA benefits and resources.

ONC's Farzad Mostashari announced the "Blue Button Mash Up Challenge". The challenge is to design an application that combines an individual's personal health information with other data empowering them to make better decisions about their care. Deadline for submission is September 5, 2012. First prize will be awarded $45,000, second $20,000 and third $10,000.

Learn more about the Blue Button Mash Up Challenge eligibility and how to submit here.

Call for Abstracts - submission deadline May 31, 2012
The 2012 Innovators Conference: Building a PFCC Culture, September 2012 in Saskatoon, Canada, will showcase innovative research and solutions to providing patient- and family-centred care at all levels, from all perspectives - the patient, the family, health care professionals, administrators, and decision makers. Committed to building new relationships and strengthening existing partnerships, the 2012 Conference will provide participants with numerous opportunities to learn from a variety of health care professionals, administrators, policy developers, and key decision makers in healthcare. Learn more...

Patient Safety and High Performance Leadership Summit: Issues in Governance, National Collaboratives, and HIT
Friday, April 27, 2012

Leaders will be brought together for a summit addressing patient safety and high performance leadership in governance by trustees, national programs, and the adoption of healthcare information technologies. The program will be broadcast live over the Internet. We cordially invite you to register for the webinar broadcast of this event.

Call for Nominations by April 25th: Patient and Family Advocate Leaders

The Partnership for Patients is seeking help to nominate and identify candidates for this leadership opportunity. Participation in the May 22-23 conference in Washington, D.C. represents the first step in an ongoing commitment to participate in the PFE Network, to include ongoing webinars, training, and future meetings. Twenty patient or patient advocate participants will be selected for this first convening, with their travel costs to be reimbursed by the Partnership for Patients. Read More

This is Patient Safety Awareness Week! There is lots going on this week to help raise hospital staff and public awareness about quality and safety. Learn about an online patient safety curriculum, a new video on Ask Me 3, and more. Read Seven Days to Safer Care...

The Patient-Centered Outcomes Research Institute (PCORI) will hold a National Patient and Stakeholder Dialogue on its first draft National Priorities for Research and Research Agenda on Monday, February 27, 2012, from 9:30 a.m.-5:00 p.m. EST, at the National Press Club in Washington, D.C. A webcast and teleconference will be provided. A portion of the comment period will be reserved to receive input from individuals participating by phone. Learn More...

October is Patient-Centered Care Awareness Month, an international awareness-building campaign initiated by Planetree to commemorate the progress "toward making patient-centered care a reality and to build momentum for further progress through education and collaboration." This year's theme is "Transformation Through Patient and Family Engagement."

Journal of Risk Management Special Issue on Patient- and Family-Centered Care Features Article by Institute's Bev Johnson and Marie Abraham

Bev Johnson, President and CEO, and Marie Abraham, Senior Policy and Program Specialist, both from the Institute, along with Dan Ford, who is Vice President of the Furst Group, co-authored Collaborating with Patients and their Families, an article in the most recent issue of Journal of Healthcare Risk Management. The article focuses on how risk managers and their administrators can create partnerships with patients and their families to improve a variety of outcomes and how the key concepts of patient- and family-centered care can be applied in any health care setting. These partnerships can result in increased safety, reduced errors, and better allocation of resources.

Members of the American Society for Healthcare Risk Management can access the entire special issue on Patient- and Family-Centered Care of the Journal of Healthcare Risk Management, Volume 29, Number 4 on-line for free.

Non-members can contact the publisher, Wiley, to purchase on-line access and reprints.

Centers for Disease Control offer Web-Based Training in Health Literacy for Public Health Professionals

The Centers for Disease Control and Prevention (CDC) launched a free, web-based Health Literacy for Public Health Professionals training program. The purpose of this training is to educate public health professionals about limited health literacy and their role in addressing it in a public health context. According to the CDC, this course will "challenge you to think about the significance of health literacy in the work you do as a public health professional...[and] provides practical steps to apply the principles and strategies of health literacy in your daily activities."

This web-based course can be accessed 24/7 by any computer with Internet access. It takes 1.5 to 2 hours to complete. Trainees can earn a variety of continuing education credits.

For more information...

Also, check out AHRQ's Health Literacy and Cultural Competence Resource Links.

During the month of September, the Open School will release a new resource each week that teaches and explores the importance of patient- and family-centered care (PFCC)

Sally and Lauren, featured in the upcoming IHI Open School course PFCC 101: Dignity and Respect, offer opinions on why providers aren't more empathetic, discuss positive interactions during their many hospital visits, and share some advice for future health care professionals.

The story of Lauren's List will be featured in the newest Open School online course, PFC101: Dignity and Respect, which will released on the final Wednesday of September.

The 4th Annual Medically Induced Trauma Support Services (MITSS) HOPE Award Nomination Deadline is September 16, 2011. The MITSS HOPE Award (Honoring Outstanding People Everywhere) honors those who exemplify the mission of MITSS: To Support Healing and Restore Hope to "patients, families, and clinicians impacted by adverse medical events, medical errors, or unexpected outcomes." Medically Induced Trauma results from "an adverse medical event that occurs during medical and/or surgical care. It may or may not be an error, but is an undesirable outcome...these events affect the emotional well being of the patient, family member, and/or clinician." Learn more about MITSS.

One of the most innovative in the last few years has been the Picker Institute's development of a concept they've dubbed "Always Events®." First conceived in 2009, Always Events® are activities and processes that should routinely be part of patient care and the patient and family experience, to ensure optimal communication, discharge, handoffs, transitions, health literacy, and more.

WIHI is pleased to welcome the Picker Institute's Executive Director, Lucile Hanscom, to the program on September 8, along with consultant Dale Shaller, who has an extensive history developing benchmarks and measurement systems for patient-centered care. They'll be joined by dynamic leaders from two organizations that have received Always Events Challenge Grants: Gaye Smith of Vanderbilt University Medical Center and Tony DiGioia of the University of Pittsburgh Medical Center (UPMC).

The Department of Health and Human Services (HHS) announced the Federally Qualified Health Center Advanced Primary Care Practice (FQHC APCP) demonstration project that will fund FQHCs to coordinate care for Medicare patients. This demonstration project, operated by the Centers for Medicare and Medicaid Services (CMS) in partnership with the Health Resources Services Administration (HRSA), will test the effectiveness of doctors and other health professionals working in teams to improve care for up to 195,000 Medicare patients.

The FQHC Advanced Primary Care Practice demonstration will show how the patient-centered medical home (PCMH) model can improve quality of care, promote better health, and lower costs. Participating FQHCs are expected to achieve Level 3 PCMH recognition, help patients manage chronic conditions, as well as actively coordinate care for patients. To help participating FQHCs make these investments in patient care and infrastructure, they will be paid a monthly care management fee for each eligible Medicare beneficiary receiving primary care services. In return, FQHCs agree to adopt care coordination practices that are recognized by the National Committee for Quality Assurance (NCQA). CMS and HRSA will provide technical assistance to help FQHCs achieve these goals.

FQHCs that have provided medical services to at least 200 Medicare beneficiaries in the previous 12-month period. Applications for the project will be accepted from June 6, 2011 through August 12, 2011, and the demonstration will be conducted September 1, 2011 through August 31, 2014.

The Institute for Patient- and Family-Centered Care announces this special invitation to patient and family leaders serving in a paid position in a hospital or health care system. Please complete the Institute's just-released second annual Salary Survey for Patient/Family Leaders in Paid Positions.

The Institute continues to receive many requests about the structure of health care providers' paid positions for patient and family leaders. Information of interest includes types of positions, various titles, and salary ranges. Please provide current information regarding patient and family leaders employed in your facility, or pass this request on to the appropriate person in your organization to provide this information for the survey. Individual responses-about position structure, title, and salary range-will remain confidential, but the aggregate results will be posted on the Institute's website. The results will provide updated information to health care systems and patient/family leaders for developing these positions to advance the practice of patient- and family-centered care and strengthen these partnerships.

If your health care system is in the process of recruiting a patient/family leader for a recently created or vacated position, or if your employed patient/family leader will be unable to respond to this survey before it closes, the supervisor overseeing this position may complete the survey.

The survey will be open until Friday, July 8, 5:00 pm ET.

Please feel free to forward the survey link to appropriate individuals.

A day-long workshop, made possible by the generous support of the Hulda B. and Maurice L. Rothschild Foundation, will be held in Chicago, May 25, 2011, at the 42nd Annual Conference of the Environmental Design Research Association (EDRA). Featured speakers will highlight the positive outcomes of involving patients and family members in the creative design process across acute and long-term healthcare settings. For more information...

The National Patient Safety Foundation (NPSF) promotes Patient Safety Awareness Week (PSAW) Celebration: March 6-12, 2011

The National Patient Safety Foundation (NPSF) is the founding sponsor of Patient Safety Awareness Week (PSAW) that will be celebrated this year March 6-12. Patient Safety Awareness Week is an annual education and awareness campaign for health care safety. Check out the 2011 NPSF Video and learn more about the 2011 PSAW Toolkit.

The Child Life Council (CLC) is pleased to announce the availability of two international scholarships to attend the 2011 CLC Annual Conference on Professional Issues in Chicago, Illinois, May 26-29, 2011

Each scholarship will cover registration for the conference, up to five nights lodging at the conference hotel, actual cost of economy round-trip airfare up to but not exceeding $1,800 U.S., and a small stipend for meals and incidentals.

Applicants may be from any country outside North America. Applications are encouraged from Certified Child Life Specialists. The award process will look most favorably on applicants who are professional practitioners or administrators in a position to be able to introduce, or greatly enhance, the use of child life practice and principles in healthcare facilities in their country or part of the world. Individuals from countries that are classified as developing or emerging economies are encouraged to apply.

Applicants must be proficient in English, as that is the language that all presentations are delivered in at the Annual Conference.

Applications must be received no later than February 18, 2011. Application Form.

Health Care's Newest Improvers: Patient and Family Advisors

Check out the Institute for Healthcare Improvement WIHI this week: Health Care's Newest Improvers: Patient and Family Advisors. It is happening this Thursday, March 10, 2011, 2:00 PM - 3:00 PM Eastern Time. WIHI is a "talk show" program from IHI. It is designed to help dedicated legions of health care improvers worldwide keep up with some of the freshest and most robust thinking and strategies for improving patient care. A 60-minute program is offered live every other week. Recordings of previous broadcasts are archived and available for listening. WIHI provides an opportunity to meet up with colleagues who want to improve patient care and shape a true health reform agenda. Read more...

Announcing the National Patient Safety Foundation's Call for Nominations for the 2011 Socius Award

The National Patient Safety Foundation (NPSF) is accepting nominations for the 2011 Socius Award. The Socius Award recognizes work that promotes positive and effective partnering between patients, families, and providers in pursuit of improved patient safety. Recognition of the importance of patient- and family-centered care and the critical role that patients and families play in the development and implementation of patient safety solutions must be at the core. Additionally, the work must recognize the positive contributions of providers in the creation of effective partnership. Nominations must be submitted by 5:00pm ET, Monday, January 31, 2011.

In addition, the NPSF also is accepting nominations for its Chairman's Medal, awarded in recognition of emerging leadership in the patient safety field; the Stand Up for Patient Safety Management Award, a management award granted to a member hospital of the National Patient Safety Foundation's Stand Up for Patient Safety™ program, in recognition of the successful implementation of an outstanding patient safety initiative led or created by mid-level management; and The Doctor's Company Foundation Young Physicians Award, recognizing physicians-in-training for their deep personal insight into the significance of patient safety work. The Doctors Company Foundation is partnering with the Lucian Leape Institute at the National Patient Safety Foundation to award six medical students, or first year residents, $5,000, plus registration and travel expenses to attend the 2011 NPSF Annual Congress.

All awards will be presented at the NPSF Annual Congress, May 25-27, in National Harbor, Washington, DC.

Final Rule Requires Equal Visitation Rights for All Hospital Patients

The Centers for Medicare & Medicaid Services (CMS), U.S. Department of Health and Human Services, issued a final rule for Medicare- and Medicaid-participating hospitals that protects patients' right to choose their own visitors during a hospital stay, including a visitor who is a same-sex domestic partner. A key provision of the rules specifies that all visitors chosen by the patient (or his or her representative) must be able to enjoy "full and equal" visitation privileges consistent with the wishes of the patient (or his or her representative).

"These rules put non-clinical decisions about who can visit a patient out of the hands of those who deliver care and into the hands of those who receive it," said CMS Administrator Donald Berwick, MD, MPP. "While we still have miles to go in making care more patient-centered, these rules make it easier for hospitals to deliver on some of the fundamental tenets of patient-centered care-care that recognizes and respects the patient as an individual with unique needs, who treated with dignity and granted the power of informed choice." Read more...

Guide to Patient and Family Engagement in Health Care Quality and Safety in the Hospital Setting

The Agency for Healthcare Research and Quality (AHRQ) of the U.S. Department of Health and Human Services recently published a notice of its intent to seek Office of Management and Budget (OMB) approval to collect information using its Guide to Patient and Family Engagement in Health Care Quality and Safety in the Hospital Setting. Comments on this notice must be received by January 14, 2011. See 75 FED REG 69674 (NOVEMBER 15, 2010).

Announcing the Picker Institute's Always Events™ Challenge Grant Program Request for Proposals

Announcing the Picker Institute's Request for Proposals (RFP) for its new Always Events™ (AE) Challenge Grant Program. This program will provide matching grants to support the development and execution of innovative projects designed to demonstrate how to implement the Always Events™ concept in practice. Always Events™ are defined as "those aspects of the patient and family experience that should always occur when patients interact with health care professionals and the delivery system." The overall intent of the demonstration projects is to encourage development and adoption of strategies, programs, and processes for achieving selected Always Events™ that can be replicated across a variety of healthcare delivery settings, and thus contribute to widespread improvements in patient- and family-centered care.

Picker Institute expects to fund up to 12 deserving proposals in the amount of up to $50,000 per grant for a period of one year. All awards will be made on a matching grant basis. A Letter of Intent (LOI) in response to the RFP is due by November 8, 2010. Applicants who pass the LOI evaluation process will be invited to submit a full proposal, due on or before January 17, 2011. AE Challenge Grant awards will be announced on March 7, 2011.

Read the entire RFP...

Learn more about the Picker Institute...

Check out the the Department of Health and Human Services (DHHS) docket to read the public comments submitted in response to the proposed rulemaking, in response to President Obama's April 15, 2010 memorandum on Hospital Visitation.

Update on Nomination of Donald Berwick to Head CMS

On July 7, 2010, President Obama made a recess appointment to name Don Berwick, MD, to serve as Administrator of the Centers for Medicare and Medicaid Services (CMS).

Read Don Berwick's Yale Medical School commencement address delivered to the 2010 graduating class.

The Institute staff extends deepest condolences to the family, friends, and colleagues of Polly Arango who died on June 26, 2010. Learn more about plans to honor Polly and to share your memories.

Director for Patient Education and Health Literacy

Vanderbilt University Medical Center is seeking a Director for Patient Education and Health Literacy to lead the implementation of health literacy standards for Vanderbilt Hospitals, which includes 600-bed Vanderbilt University Medical Center and The Monroe Carrell Children's Hospital; Vanderbilt Medical Group and Clinic, with over 1,200 physicians; and the Vanderbilt University School of Medicine, ranked #15 in US News and World Reports annual ranking of graduate medical education.

This newly created position will establish the strategic plan for the Health Information Center, oversee the development of patient education content and material, and coordinate metrics to measure communication effectiveness. Focusing on operational partnerships, this highly visible role will initiate graphic and readability standards across the medical center and support new patient education programs. This role reports directly to the Director of Patient and Family Centered Care.

Institute for Healthcare Improvement (IHI) Seeking Applications from Patients and Patient Activists

The Institute for Healthcare Improvement (IHI) is now seeking applications from patients and patient activists who have played an important role in advancing the safety of care in their communities interested in participating in the first Leadership Summit for Patient Activists and Partners in Quality and Safety.

On Sunday, December 5, 2010, IHI will gather 50 patients and patient activists for a half-day formal session at the 22nd Annual National Forum on Quality Improvement in Health Care in Orlando, FL.

Application Process:

Patients and patient activists interested in applying will be asked to fill out the questions in the application below and submit to Jenna Ward ( at IHI by October 8, 2010. All applications will be reviewed by the Leadership Summit Steering Committee and invitations to attend will be sent in mid-October.

Those invited to attend the Leadership Summit will receive complimentary registration to the National Forum, December 5-8th, four nights at the Gaylord Palms Resort in Orlando, FL, and reimbursement for up to $400 in round trip airfare.

The following criteria will be considered in selecting participants:

  1. Significant experience interacting with health care providers as a patient or the caregiver of a patient
  2. Experience or capacity to advocate and catalyze action to improve patient safety
  3. Ability to articulate their personal story with health care and generalize the lessons for others
  4. Ability to attend the National Forum in Orlando, Florida from December 5th - December 8th, 2010
  5. Desire to form an ongoing coalition of change agents with the ability to continue discussions and meeting beyond the 22nd Annual National Forum event

Pinwheel Scholarship Offered to Pinwheel Sponsors!

Pinwheel Sponsors can register for a chance to win the Pinwheel Scholarship for the upcoming Pinehurst Hospitals and Communities Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar, November 1-4, 2010! To participate in this random drawing, please contact the Institute no later than Tuesday, September 14, before 5 pm (EST). Simply send an email to or call 301-652-0281.

The scholarship includes the seminar registration fee (registration value: $1390 for health care professionals/individuals; $790 for a patient/family member) as well as resource materials and working meals.

To participate, your organization must agree to accept this scholarship if selected. The winner will be notified on September 15.

IFCC Salary Survey for Patient/Family Leaders in Paid Positions

Thank you to all who recently participated in the Institute for Patient- and Family-Centered Care's short survey for patient and family leaders who serve in paid positions within hospitals or health care systems. The results of the survey are now available.

Developing a Guide to Patient and Family Engagement in Health Care Quality and Safety in the Hospital Setting

In September 2009, the Agency for Healthcare Research and Quality (AHRQ) awarded a multi-year grant to a team of organizations led by the American Institutes for Research to develop, evaluate, and implement a Guide to Patient and Family Engagement to improve patient safety in hospitals.

The Institute is honored to be a member of the team that includes Carilion Health Clinic, Consumers Advancing Patient Safety, the Joint Commission, and the Health Research and Education Trust. Read the press release and watch our web site for more information about this exciting initiative.

Three Picker Award winners took the stage at ISQua's 26th International Conference

Picker Institute, a major sponsor of the International Society for Quality in Health Care (ISQua), is represented at the organization's annual international conference with the Picker Awards and Picker Institute-sponsored education sessions addressing the Positive Patient Experience.

Three Picker Award winners took the stage at ISQua's 26th international conference Oct. 11-14 in Dublin, Ireland, to discuss "How to achieve outstanding patient- and family-centered care: methods and tools."

Susan Frampton, the president of Planetree, spoke on "How to achieve optimal patient encounters in hospitals." Planetree received the organizational Picker Award in 2006.

Margaret O'Kane talked about "Accountability and patient-centered care." The winner of the 2009 individual Picker Award, O'Kane is founder and president of the National Committee for Quality Assurance.

Beverly Johnson is the president and CEO of the Institute for Patient- and Family-Centered Care, which received the 2009 organizational Picker Award. Her presentation focused on "How patients and their families can help providers achieve better patient- and family-centered care."

IFCC Salary Survey for Patient/Family Leaders in Paid Positions

Thank you to all who recently participated in the Institute for Patient- and Family-Centered Care's short survey for patient and family leaders who serve in paid positions within hospitals or health care systems. The results of the survey will be presented at the Institute's Hospitals and Communities Moving Forward with Patient- and Family-Centered Care training seminar, April 19-22, 2010 in Dallas, Texas, and the survey results also will be posted on the Institute's website following the seminar. Survey Results

American Academy on Communication in Healthcare (AACH) Offers Annual ENRICH Course this June

The American Academy on Communication in Healthcare (AACH) offers an annual ENRICH (Enriching Relationships in Communication in Healthcare) course on how to teach communication and relationship skills. This year's course, Using the Keys to Clinical Quality, Patient Safety, and Patients' Experiences of Care, jointly sponsored by Lifespan, the American Academy on Communication in Healthcare, and University of Arkansas for Medical Sciences, is June 11-15, 2010, at the Campus of Brown University, Providence, Rhode Island.

For more information...

The Institute for Patient- and Family-Centered Care Receives 2009 Picker Organizational Award for Excellence® in the Advancement of Patient-Centered Care

The Institute for Patient- and Family-Centered Care received the 2009 Picker Organizational Award for Excellence® in the Advancement of Patient-Centered Care. The Picker Institute presented this award at the International Society for Quality in Health Care's (ISQua) International Conference, in Dublin, Ireland on October 12, 2009, "In recognition of the success of the Institute for Patient- and Family-Centered Care in advancing patient-and family-centered care in all settings where individuals receive care and support."

Upon accepting the award on behalf of the Institute, Bev Johnson, President and CEO, stated: "Thank you. It is indeed an honor to accept this lovely award from the Picker Institute on behalf of the Institute for Patient- and Family-Centered Care. I still vividly remember when... Read more...

The 2009 Picker Award for Excellence® in the Advancement of Patient-Centered Care

The Picker Institute selected three entities to receive the 2009 Picker Award for Excellence® in the Advancement of Patient-Centered Care. The Institute for Patient- and Family-Centered Care received the organizational award, "In recognition of the success of the Institute for Patient- and Family-Centered Care in advancing patient- and family-centered care in all settings where individuals receive care and support." Margaret E. O'Kane received an individual award, "In recognition of her leadership of the National Committee for Quality Assurance and her lifetime achievement in improving patient-centered health care through measurement, reporting and accountability." Dr. Bill Thomas also won an individual award "In recognition of his outstanding achievements in envisioning and implementing a new paradigm for long-term care that focuses on nurturing and sustaining a meaningful life for the aging." Read more...

Congratulations to our Pinwheel Champion Beth Israel Deaconess Medical Center!

Beth Israel Deaconess Medical Center in Boston received the Society of Critical Care Medicine's (SCCM) 2010 Family-Centered Care Award which will be presented in January. This award is presented to one hospital or intensive care unit in order to "recognize innovation that improves the care provided to critically ill and injured patients and their families." SCCM is the largest multiprofessional organization focused on critical care, with more than 14,000 members in 80 countries. Read more...

Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit

Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit is ready for debut on the website in the download section

The 4th International Conference Materials available at the IFCC Live Learning Center

View educational content from The 4th International Conference on Patient- and Family-Centered Care. Many Conference Handouts can be downloaded for free. Audio recordings of the Conference are available for purchase in MP3 CD-Rom sets or online. Purchase the entire set or select individual sessions. Go to the Institute for Patient- and Family-Centered Care's Live Learning Center

National Initiative for Children's Healthcare Quality

In response to feedback from constituents NICHQ is delighted to announce the rejoining of their two signature events, The Obesity Congress and the Annual Forum for Improving Children's Healthcare, to be held March 8-11, 2010, in Atlanta, Georgia.

Folding these two important events into one comprehensive summit will allow attendees with travel and budget restraints to maximize their conference attendance, which is increasingly important in today's turbulent economy. The Annual Forum for Improving Children's Healthcare and Childhood Obesity Congress promises to be the largest pediatric quality conference in the US, and by pairing with the Childhood Obesity Congress, will feature best practices in childhood obesity assessment, prevention and treatment. For further information on the Annual Forum, visit NICHQ's Web site at or contact Laura Falvey, NICHQ Forum Project Coordinator:
Phone: (617) 391-2712
Fax: (617) 391-2701

Pandemic Planning and Patient- and Family-Centered Care

With the arrival of H1N1 influenza, hospitals and clinics are working to prevent or limit disease transmission. At the most recent seminar held in Minnesota, the Institute created a working group of patient and family leaders, clinicians, and administrators to develop a resource to help pandemic planners incorporate the core concepts of patient- and family-centered care in their decision-making and policy development.

The Institute welcomes your review and feedback on the resource before we finalize it and post it as a download on our website. You may mark it up and fax a copy to the Institute or email your suggestions to us. We would like to hear from you by December 30th. Also let us know if these guidelines result in changes in policy or practices regarding pandemic planning and patient- and family-centered care, and, if so, please give us specific examples.

Download copy for review and feedback.

2009 American Hospital Association-McKesson Quest for Quality Prize®

Congratulations to Institute Pinwheel Champion, Bronson Methodist Hospital, of the Bronson Healthcare Group! Bronson Methodist is the recipient of the 2009 AHA-McKesson Quest for Quality Prize. Bronson Methodist Hospital in Kalamazoo, Michigan was selected by a multi-disciplinary committee of health care quality and patient safety experts based on its culture of quality and efforts to achieve the Institute of Medicine's six quality aims for health care.

The American Hospital Association-McKesson Quest for Quality Prize is presented annually to honor leadership and innovation in quality, safety, and commitment to patient care. The criteria for the 2009 award include the demonstration of an organizational commitment to achieving the Institute of Medicine's six quality aims: safety, patient-centeredness, effectiveness, efficiency, timeliness, and equity. Read More...

Kudos to another Pinwheel Champion, Beth Israel Deaconess Medical Center (BIDMC), Boston, Massachusetts, which was named as the finalist for the American Hospital Association-McKesson Quest for Quality Prize. BIDMC's goal of eliminating all preventable harm by 2012, emphasizes leadership and transparency to help the hospital move toward that important goal. BIDMC's strong values of reliability, safety, effectiveness, patient-centeredness and equity are reinforced throughout the organization. Read more...

Bravo Pinwheel Sponsors!

Congratulations to many of our Pinwheel Sponsors, five of which are in the top 16 on the 2009-2010 Honor Roll for America's Best Hospitals, six of which are on the top ten list of 2009 Honor Roll of the Best Children's Hospitals, and ten of which are on the list of the 100 Most Wired Hospitals or Hospital Systems. Read More...

Commonwealth of Massachusetts Recognizes the Institute for Patient- and Family-Centered Care

In a letter informing all hospitals in Massachusetts of their obligation to form Patient and Family Advisory Committees by October 1, 2010, the Executive Office of Health and Human Services for the Commonwealth of Massachusetts stated, "The Institute for Family Centered Care has identified core concepts of patient and family-centered care as respect and dignity, information sharing, participation and collaboration. The Institute for Family Centered Care is a valuable resource for materials in developing a PFAC." Read the entire letter.

U.S. Agency for Healthcare Research and Quality (AHRQ) Healthcare 411 Podcasts

Check out the podcasts from the U.S. Agency for Healthcare Research and Quality (AHRQ) Healthcare 411, which features current news and information on advancing excellence in health care. A recent podcast, What You Need to Know About Community-Based Patient Safety Advisory Councils, showcases the concept that consumers as part of patient safety advisory councils help to reduce health care risks and improve the quality of care.

Many health care organizations know that patients are some of the strongest and most articulate advocates for patient safety improvements-and are welcomed as part of the team by creating community-based patient safety advisory councils that encourage patients, clinicians, and organizational leadership to work together. This 3-minute podcast features an interview with AHRQ Director Dr. Carolyn Clancy who discusses how health care organizations in the U.S. are creating these councils to help reduce health care risks and improve health care quality. AHRQ also has a Guide for Developing a Community-Based Patient Safety Advisory Council available online.

Healthcare 411 is a news series produced by the Agency for Healthcare Research and Quality (AHRQ), part of the U.S. Department of Health and Human Services.

University of British Columbia (UBC) Interprofessional Continuing Education Accepting Abstract Submissions

The University of British Columbia (UBC) Interprofessional Continuing Education, a non-profit organization that provides multidisciplinary conferences to health professionals and the community on health-related issues is accepting abstract submissions until September 15, 2009 for its upcoming Conference:

Fourth National Biennial Conference on Adolescents and Adults with Fetal Alcohol Spectrum Disorder April 14 - 17, 2010 Vancouver, British Columbia, Canada

This conference will bring together a diverse group of professionals and families to share research, experience, and practice to sustain and enhance the lives of adolescents and adults with FASD, their families, service providers, and communities.

For further information, please visit or contact 604-822-7524 or via e-mail

Building Bridges Across Canada by Linking Pediatric Patient & Family Advisory Groups

The Canadian Family Advisory Network (CFAN) was formed in 2002 to link family advisory groups that are involved with paediatric acute care, rehabilitation, regions and hospices across Canada. Our members have experience from across all health sectors and are a mix of family representatives and staff liaisons.

CFAN encourages and facilitates the participation of families in making excellent, family-centered healthcare for children and youth a reality throughout Canada by:

  1. Providing a means for the otherwise quite isolated groups to share information and advice about recruitment, retention, reporting relationships, family participation in patient safety initiatives and the education of professionals and trainees.
  2. Ensuring that the voices of families are heard in discussions and debates in national, provincial, and regional arenas about the health of children and youth and about the healthcare services that are (or should be) available to them and their families.
  3. Serving as a resource to any organization that wishes to collaborate with families in projects aimed at improving the health of children and youth.

For more information:

U.S. News & World Report releases its Annual "Best Children's Hospitals" Honor Roll

U.S. News & World Report has released its 20th annual list of the nation's "Best Children's Hospitals," this year forgoing its traditional overarching best hospital list and instead creating an "Honor Roll" containing facilities that earned a spot on the top-30 lists for all 10 specialties surveyed.

New this year is a reflection of the extent to which a hospital involves parents and families in care. It applies to all pediatric specialties and is worth up to five points: one point for having a parent advisory committee, plus one point if the committee meets at least three times a year, and up to three additional points if the hospital involves:

  • At least one parent or family member as an active member of the strategic or facility committee;
  • At least one parent or family member as an active member of one or more standing committees (e.g., quality improvement, patient safety, ethics); and
  • Parents or family members regularly in clinical decision making in ways such as family-centered rounds, care conferences, or other participatory programs.

Read the entire methodological report

New Book on Child Life Features Chapter on Family-Centered Care

The just released The Handbook of Child Life ~ A Guide for Pediatric Psychosocial Care features an entire chapter devoted to Family-Centered Care. In the chapter: Family-Centered Care and the Implications for Child Life Practice, co-authored by Beverley Johnson, President and CEO of the Institute for Patient- and Family-Centered Care, family-centered care is defined and its history and benefits are explored. The chapter captures the perspectives of patients and families, health care providers, institutions, and the system. Included are practical applications and suggestions to support all the elements of family-centered care, such as performance standards and descriptions, evaluation tools to assess programmatic and individual efforts, and a discussion about providing culturally competent care.

The book is edited by Richard H. Thompson, PH.D, and published in 2009 by Charles C. Thomas Publisher, LTD.

For more information, see the Child Life Council.

North Carolina Medical Journal Features Article on Patient- and Family-Centered Care

The March/April edition of the North Carolina Medical Journal features the article, Patient- and Family-Centered Care: Partnerships for Quality and Safety, written by the Beverley H. Johnson; Marie R. Abraham, MA; and Terri L. Shelton, PhD. The focus of this edition of the Journal is the patient and his or her family; it reexamines the entire medical model and attempts to shift the focus toward the patient to provide health care that is patient-centered.

The authors point out that an accumulating body of research demonstrates that patient- and family-centered care benefits everyone involved and its benefits are substantial. The article addresses the national momentum towards patient- and family-centered care, the adoption of the principles of the medical home, the Joint Commission's patient safety goals, and highlights exemplary programs in North Carolina.

To read this exciting article, or the entire issue...

Family-Centered Multidisciplinary Rounds Enhance the Team Approach in Pediatrics

The recent article Family-centered Multidisciplinary Rounds Enhance the Team Approach in Pediatrics, is published in PEDIATRICS, the Official Journal of the American Academy of Pediatrics. The article concludes that "Family-centered multidisciplinary rounds is a method of conducting inpatient hospital rounds that fosters teamwork and empowers hospital staff. The patient and family are engaged in and are the focal point of the rounds. Staff members are able to hear everyone's perspective and give input. The impact on staff satisfaction and the family's ability to participate in their care is significant." To read more about this study, see the PEDIATRICS website.

Pandemic Planning and Patient- and Family-Centered Care

Quarantine signWith the arrival of H1N1 influenza hospitals and clinics began making decisions about policies and practices to aid in efforts to prevent disease transmission. In October 2009, a working group was convened during the Institute's Hospitals and Communities Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar in Minneapolis, MN to create a set of guidelines that reflect the core concepts of patient- and family-centered care when developing a pandemic plan. During any outbreak of infectious disease, it is important to take steps to contain the illness and to remember that family members are stewards of patient safety and integral to the healing of loved ones. The continued presence of a family member with a patient, during a pandemic has both safety and psychological components. Read More...

Johnson & Johnson Arts in Healthcare Grant Deadline: October 15, 2009

Through health education and development, Johnson & Johnson aims to build skills and health literacy among a broad range of people serving community health needs, ultimately increasing community support, involvement and leadership in the public health arena. In keeping with this strategy, Johnson & Johnson working in conjunction with the Society for the Arts in Healthcare, seeks to engage community healthcare workers, caregivers, families and artists in the practice of arts in healthcare. Grant applicants must be a member of Society for the Arts in Healthcare for consideration. Info:

American Academy on Communication in Healthcare (AACH)

The American Academy on Communication in Healthcare (AACH) works to improve "the effectiveness of healthcare by focusing on education, research and practice in communication and partnerships among patients, families and healthcare teams." Among other events, AACH offers an annual ENRICH (Enriching Relationships in Communication in Healthcare) course on how to teach communication and relationship skills.

This year's course, Promoting Excellence: Relationship-Centered Care and Collaborative Communication, jointly sponsored by the College of Medicine, Mayo Clinic, and the American Academy on Communication in Healthcare, will be June 23-27, 2009, at the Mayo Civic Center in Rochester, Minnesota. The course will focus on teaching communication and relationship skills on health care teams. For all members of the care team-including patient and families-improved communication and relationship skills can facilitate working together more effectively to deliver patient- and family-centered care.

The course will address four aspects for building a system to ensure the highest quality patient care; one that encourages openness, "flattens the hierarchy" to enhance full disclosure of vital information, and supports teams of committed, skilled individuals who work together across many different disciplines:

  • Promoting fundamental relationship-centered care;
  • Anticipating and managing unexpected healthcare outcomes;
  • Developing high-performance teams; and
  • Cultivating relationship-centered leadership.

For more information, see the links below.

American Academy of Pediatrics

The American Academy of Pediatrics is offering the last webinar in the Medical Home Implementation CME Series "Incorporating Family Participation Practices Into Your Practice and Project" on June 24th at 11:00am CDT (12:00pm EDT/10:00am MDT/9:00am PDT).

Participants will:

  • Learn how to gain buy in and involve parents/caregivers in planning and implementing their projects and practice.
  • Understand the opportunities for different levels of family participation in their projects and practice.
  • Evaluate ways to maintain and sustain family participation in their projects and practice.

The PFACnetwork

The PFACnetwork is a listserv for anyone interested in the work of patient and family advisory councils. The PFACnetwork listserv currently has more than 250 participants. Members of the PFACnetwork often want to share documents-such as bylaws, forms, brochures, policies, job descriptions, research-with each other. To address this need, the Institute for Patient- and Family-Centered Care created a space on its website for the exclusive use of the PFACnetwork members to share and review documents consistent with the principles of patient- and family-centered care. The Institute hopes that facilitating this sharing of materials will foster the development of best practices in all areas of patient- and family-centered care.

Members of PFAC, check out what is currently posted on our new page: PFAC Resources and Materials, from Tools for Change.

Want to post a document? Do you have questions or comments? Please contact Joanna Kaufman at or e-mail: