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The Institute offers a wide variety of free downloadable PDFs to use in your organization. Please click one of the links below to see and download a PDF resource.

Advancing the Practice of Patient- and Family-Centered Care in Hospitals: How to Get Started...

Advancing the Practice of Patient- and Family-Centered Care in Hospitals:  How to Get Started... cover

The Institute for Patient- and Family-Centered Care is pleased to offer guidance for how to get started in advancing the practice of patient- and family-centered care and in creating effective partnerships with patients and families with this new publication, Advancing the Practice of Patient- and Family-Centered Care in Hospitals: How to Get Started...

Advancing the Practice of Patient- and Family-Centered Care in Hospitals: How to Get Started...


Revised Advancing the Practice of Patient- and Family-Centered Care in Primary Care and Other Ambulatory Settings: How to Get Started...

cover of Advancing the Practice of Patient- and Family-Centered Care in Primary Care and Other Ambulatory Settings: How to Get Started...

What is patient- and family-centered ambulatory care? Why does it matter? How does it fit with our overall mission? And finally, what can our practice or organization do to advance the practice of patient- and family-centered care? Where do we start? Advancing the Practice of Patient- and Family-Centered Care in Primary Care and Other Ambulatory Settings: How to Get Started... was developed to provide answers to these questions.

Advancing the Practice of Patient- and Family-Centered Care in Primary Care and Other Ambulatory Settings: How to Get Started...


Changing Hospital "Visiting" Policies and Practices: Supporting Family Presence and Participation

Family visiting patient

The Institute for Patient- and Family-Centered Care formed a working group composed of health care leaders, staff, and patient/family advisors, all with expertise in patient- and family-centered care, to develop a guidelines with respect to changing hospital "visiting" policies and practices. Their recommendations are found in the accompanying document, in addition to specific comments regarding restrictions on visitation rights, and the format, style, and language used in policies and procedures.

Also included are Appendix A: Members of the Working Group for Changing Hospital "Visiting" Policies And Practices: Supporting Family Presence and Participation; Appendix B: Guidelines for the Presence and Participation of Families and Other Partners in Care - A Template; and a list of References. Read More...


HIPAA-Providing New Opportunities for Collaboration

HIPAA-Providing New Opportunities for Collaboration cover

The Federal law, the Health Insurance Portability and Accountability Act (HIPAA), requires confidentiality of medical records and other individually identifiable health information. The Institute of Medicine (IOM) publication, Crossing the Quality Chasm: A New Health Care System for the 21st Century, states that health care must be patient-centered and sets forth several "rules to redesign and improve care," including "shared knowledge and the free flow of information." Can health providers comply with HIPAA while following the IOM recommendations? How can hospitals and health care organizations strike a balance between engaging patients and families in planning care and decision-making-which requires the sharing of information to assure safety and quality of care-while safeguarding patient confidentiality? The free download HIPAA-Providing New Opportunities for Collaboration addresses these questions and more.

HIPAA-Providing New Opportunities for Collaboration

This article is one of many included in the issue of Advances in Family-Centered Care linked below. The entire issue, Responding to HIPAA: Hospitals Confront New Challenges, Devise Creative Solutions, may be purchased from the Institute's website at:

Responding to HIPAA: Hospitals Confront New Challenges, Devise Creative Solutions


Pandemic Planning and Patient- and Family-Centered Care

Pandemic

The Institute for Patient- and Family-Centered Care convened a work group to consider Pandemic Planning and Patient- and Family-Centered Care during the Institute's Hospitals and Communities Moving Forward with Patient- and Family- Centered Care Intensive Training Seminar held in Minneapolis, MN in 2009. Pandemic Planning and Patient- and Family-Centered Care includes suggestions-reflecting patient- and family-centered care-to consider when developing a pandemic response plan.


Revised Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit

Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit cover

There are countless ways that patients and families can serve as advisors to enhance quality and safety, redesign systems of care, and educate health care professionals and other staff, students, and trainees about safety. Some are formal and ongoing, others are time limited and informal. All are necessary to ensure that care is safe and truly responsive to patient and family needs, priorities, goals, and values. This Mini Tool Kit contains a myriad of materials for use in partnering with patients and families to enhance safety and quality, including:

Patients & Families as Advisors in Enhancing Safety and Quality: Broadening Our Vision
Patient and Family Advisors: Sample Application Form
Patient Safety Champions: Their Roles in Developing and Supporting Partnerships with Patients and Families
Tips for Group Leaders and Facilitators on Involving Patients and Families on Committees and Task Forces
Applying Patient- and Family-Centered Concepts to Rapid Response Teams
Selected Resources for Partnering with Patients and Families In Patient Safety

Download: Partnering with Patients and Families to Enhance Safety and Quality: A Mini Toolkit


Partnering with Patients and Families... A Roadmap for the Future

Partnering with Patients and Families... A Roadmap for the Future cover

"Fixing" the problems that plague health care in the United States, most experts now agree, demands system-wide solutions. With support from the Robert Wood Johnson Foundation, the Institute for Patient- and Family-Centered Care collaborated with the Institute for HealthCare Improvement and convened an invitational expert panel to respond to this briefing paper on patient and family partnerships in quality improvement and health care redesign.

Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future


Partnering with Patients and Families... Recommendations and Promising Practices

cover of Partnering with Patients and Families... Recommendations and Promising Practices

The Institute for Patient- and Family-Centered Care is delighted to announce the release of Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: Recommendations and Promising Practices.

This publication, with funding support from the California HealthCare Foundation, is based on the deliberations and key recommendations that emerged from a unique meeting convened by the Institute for Patient- and Family-Centered Care in collaboration with the Institute for Healthcare Improvement and funded by the Robert Wood Johnson Foundation. Highlighted are examples of best practices drawn from hospitals, ambulatory programs, medical and nursing schools, funders of health care, patient- and family-led organizations, and other health care entities. These organizations are making exemplary progress in partnering with patients and families to enhance quality and safety and to improve the experience of care. (For more information on the meeting, see Partnering with Patients and Families... A Roadmap for the Future, listed above.)