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Current Initiatives and Collaborations

The Institute provides essential leadership for advancing the practice of patient- and family-centered care. By promoting collaborative, empowering partnerships among patients, families, and health care professionals, the Institute facilitates patient- and family-centered change in all health care settings. The Institute also serves as a central resource for policy makers, administrators, program planners, clinicians and staff, educators of health professionals, design professionals, and patient and family advisors and leaders.

Here are some current or ongoing initiatives in which the Institute is engaged:

With the support of the Rothschild Foundation, the Institute has developed—for executives and senior managers of hospitals and long-term care settings—multimedia resource materials on partnering with patients, residents of long-term care facilities, and families to improve care, programming, and health care design. These resources are intended to be transformative, capturing the interest and sparking the creativity and commitment of leaders to encourage and support partnerships across the continuum of care. In addition, several Institute publications are being updated as a part of this project.

Summer 2012

Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care CommunitiesThe Institute is pleased to announce the availability of two new resources, which are available for purchase on the Institute's website resources page.

Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities, is a timely and comprehensive guide that shows how partnerships with patients, residents living in long-term care communities, and families have been essential to organizational change in health care settings across the continuum of care. It provides a framework for senior leaders to create and sustain effective partnerships and offers specific steps that leaders can take to develop partnerships to redesign and improve health care. Best practices from over 130 exemplary organizations provide concrete and real-world examples. Several practical tools and a detailed listing of written, audiovisual, and online resources are included. A chart, describing outcome data associated with partnerships, is also included in the publication.

Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities DVDPartnerships with Patients, Residents, and Families: Leading the Journey, is a 20-minute video that highlights the accomplishments and ongoing activities of key leaders who have created exemplary partnerships in two health care organizations representing very different types of care settings—acute and long-term, urban and rural. MCGHealth System in Augusta, Georgia, (now known as Georgia Health Sciences Health System), is an urban academic center with a large ambulatory program. Perham Memorial Hospital and Home (now known as Perham Health and Perham Living), in Perham, Minnesota, is a rural, critical access hospital with a long-term care community. The video captures the experiences of leaders in these organizations and shares their insights regarding the benefits of collaborating with patient, resident, and family advisors.

The Institute is grateful to the Hulda B. & Maurice L. Rothschild Foundation for their generous support of both the guide and video.

Agency for Healthcare Research and Quality (AHRQ)The Institute is participating on a team, led by the American Institutes for Research, for an Agency for Healthcare Research and Quality (AHRQ) funded multi-year initiative to develop, evaluate, and implement a guide to promote patient and family engagement in hospital settings. Other organizations in this collaborative endeavor include, Consumers Advancing Patient Safety, the Joint Commission, the Health Research & Educational Trust, Planetree, the Maryland Patient Safety Center, Aurora Health Care, and Emory University Hospital.

Summer, 2012—AHRQ released its report, Guide to Patient and Family Engagement: Final Environmental Scan Report—which is the first step toward developing the patient/family engagement guide. The report assesses the current literature, tools, and resources being used to engage patients and their families.

Summer, 2013—AHRQ released its Guide to Patient and Family Engagement in Hospital Safety and Quality. This online resource provides four evidence-based strategies for hospitals to engage patients and families in their care. These field-tested strategies can help make care better and safer by bridging the communication gaps among patients and families and their health care providers.

The Institute's President and CEO, Bev Johnson, participates on the Consensus Committee to Establish the Recommended Standards for Newborn ICU Design and is on the planning committee for the Annual Gravens Conference on the Physical and Developmental Environment of the High Risk Infant.

Bev Johnson, Institute President & CEO, serves on the Selection Committee for the American Hospital Association-McKesson Quest for Quality Prize and is a member of the Board of Directors for the Patient-Centered Primary Care Collaborative (PCPCC).

Learn more about the Institute's Past Initiatives.