Issue 143 | June 2021

IPFCC Events

Upcoming PFCC.Connect Informal Conversations Expanding the Patient and Family Voice - Innovations and Learnings in the Virtual Space Tuesday, June 29, 2021, Noon ET Register here IPFCC Portal Launching in July  Stay connected with IPFCC’s latest news, events, and resources! We will soon be launching our new IPFCC Portal that will make it easier for you to learn about and register for IPFCC events, purchase resources and publications from our bookstore, access and update your contact information, and more. Watch your email for our invitation to register and login!

IPFCC at Work

Better Together: Two Organizational Self-Assessments Available Two new IPFCC organizational self-assessments are available to help foster family presence in hospitals: Partnering with Families in Hospitals and Partnering with Families in Children’s Hospitals. These self-assessments provide an opportunity for both adult and children’s hospitals to assess current patient- and family-centered policies and practices and determine initial priorities and action steps to begin the process of change and improvement. You can access the assessments on IPFCC’s website.

IPFCC and DBSA Bring Together Stakeholders for a Mood Disorder Convening

With funding support from the Patient-Centered Outcomes Institute (PCORI), IPFCC and the Depression and Bipolar Support Alliance (DBSA) recently hosted Amplifying the Peer Voice in Behavioral Health Research to Drive Transformation: Mood Disorder Convening. Over the course of two virtual sessions, the Convening brought together a diverse group including researchers, clinicians, mental health organization advocates, and individuals with lived experience (peers). Based on discussions and learnings from the Convening, IPFCC and DBSA will develop recommendations, including opportunities for future mood disorders research and strategies for developing meaningful collaborations with peer partners. These recommendations will be available in Fall 2021.

NICU Families and Covid-19 In early June, Deborah Dokken, IPFCC’s Coordinator for Patient and Family Partnerships, served as a speaker at the Members’ Action Meeting of the NICU Parent Network. The meeting focused on the impact of COVID-19 on NICU families. Deborah shared IPFCC’s recently-developed resource, “Family Presence During A Pandemic: Guidance for Decision-Making.”

Resources and Opportunities

Patients' Roles in Governance of Learning This article explores the intersection of patient and family engagement and shared governance in learning healthcare systems (LHS). Learn from the findings of a qualitative study which included interviews with 99 patient and employee leaders from 16 U.S. LHS. Read the article.

Looking for a New PFAC Tool? Check out the new resource, Patient and Family Advisory Council Online Toolkit, developed by Dr. Jeffrey Schlaudecker and Keesha Goodnow from the University of Cincinnati, Department of Family and Community Medicine. The toolkit includes a Quick Start Guide video, as well as a repository of helpful resources and sample materials for those looking to build their PFAC. Access the Toolkit.

Recordings from IPFCC Past Webinars & Informal Conversations  “Reflecting on Inclusion, Diversity, Race, and Health Equity” May 11th, noon ET View the recording Other COVID specific webinar recordings are available here. If you missed previous webinars, you can access all the recordings here.

PFCC.Connect If you missed previous Informal Conversations, we encourage you to listen to the recordings and access materials/slides at PFCC.Connect Library. Not a member? Join PFCC.Connect today!