Marie Abraham, MA, is Vice President for Programming and Publications for the Institute for Patient- and Family-Centered Care (IPFCC). She provides consultation to hospitals and ambulatory care practices, develops resource materials and videos, co-authors publications, and serves as a planner and faculty member for IPFCC conferences, seminars, webinars, and other trainings. Marie provides consultation to promote the meaningful involvement of patients and family members on research teams including projects funded by the Agency for Healthcare Research and Quality. Marie is currently Project Lead for a PCORI-funded engagement project, "Creating Capacity for Sustainable Partnerships with Patients and Families in Research." Marie has served as faculty and consultant for national quality improvement initiatives including the Vermont Oxford Network, the National Initiative for Children's Healthcare Quality, and the Institute for Healthcare Improvement. She also served for nine years on the FamilY Partnership Network, a family and youth advisory group for the American Academy of Pediatrics.
Prior to joining IPFCC, Marie worked as a direct service provider to infants and young children and their families and as a trainer of trainers in the field of early childhood special education. Marie also brings personal perspective and passion to her work. Marie lives in Connecticut and has three sons, one of whom required intensive therapy and early intervention for his first six years.
Kristina Andersen, BSN, RN, SMART Discharge Project Coordinator, was initially hired at Anne Arundel Medical Center in 2002 as a new graduate nurse for the Joint and Spine Center. In 2004, she was selected to perform the role of charge nurse on an interim basis, but quickly earned the title of Unit Charge Nurse. In that role, Kristina served on various unit and hospital committees and councils, including Chair for the hospital-wide Charge Nurse committee. Most recently, she was selected to serve as Project Coordinator for the SMART Discharge protocol, an initiative funded by a Picker Institute grant. In this position, she works with patients, families, and hospital staff to develop, coordinate, and initiate the SMART discharge protocol.
Kristina is featured in the webinar The SMART Discharge—An 'Always' Event
Kelly Barmer became a peer visitor after her husband, JP, was paralyzed in a motorbike accident in 2006. After sustaining a T4 complete spinal cord injury along with a Traumatic Brain Injury, JP spent over a year involved in inpatient and outpatient rehabilitation. JP overcame many obstacles and defied medical odds in many ways with his recovery. JP became one of the first peer visitors at Vanderbilt as a way to give back and help others in similar situations. Kelly was also trained and together they became the first husband/wife peer visiting team at Vanderbilt. Aside from peer visiting, Kelly works for Alive Hospice, Inc. as an Account Executive where her role is to educate doctors, nurses, case managers, and social workers on end-of-life care. She and JP have an 8-month-old daughter, Reagan.
Kelly is featured in the webinar Patient and Family-Centered Care in Adult Critical Care Units.
Patty Black graduated with a degree in Business Management with an emphasis on organizational behavior, theory, and design. She used this education to help develop a county-wide project that trained and supported pastoral care-teams to provide both assessment and support for individuals and families confronting life crises. Upon receiving less than adequate health care that resulted in life threatening experiences, she has developed a passion for the patient/provider partnership and the voice of the patient. She has served on the Oregon State Task Force on Patient-Centered Primary Care Home Standards implementation as well as the PCPCH Drafting the Rule into Law Committee. She is an IHI National Patient Advocate and has participated as a keynote presenter in the Oregon Health Care Quality Corporation's Learning from the Best: Patient Engagement and Leadership. Patty presented at a statewide conference, Place Matters: Working Together to Create Healthy Communities,and spoke at The Value of Story, Aligning Forces for Quality Consumer Representative Meeting, San Francisco. She is the Program Coordinator for the Patient Advisory Council for PeaceHealth Medical Group in Eugene, OR. Additionally, Patty has served on a regional network of care project for cancer navigation. Patty is passionate about gardening, mostly ornamentals, cats, and the game of tennis.
Patty is featured in the webinar Preparing for Collaboration with Patient and Family Advisors.
Paul Boucher, MD, FRCPC, is Medical Director of the Multisystem ICU at the Foothills Medical Centre in Calgary, Canada and has been an Intensive Care physician since 2001. Paul has been the Co-Chair of the Department's Patient- and Family-Centered Care Committee since 2009. Community members and a wide variety of professionals serve on this committee which is tasked to improve the quality of care in the adult intensive care units in Calgary via quality improvement projects surrounding end-of-life care and patient and family satisfaction. Paul has served as IPFCC faculty since 2011.
Stacy Brand is the outreach manager for the Transplant Center at the University of Michigan Health System in Ann Arbor, Michigan. In her current role, she plans and oversees clinical outreach activities to help enhance awareness of the referral base and promote growth of the center. She is responsible for outreach to referring physicians and dialysis centers throughout Michigan, manages the development and implementation of continuing medical education symposiums, leads the kidney transplant peer mentor program, helps with administrative needs for the other organ peer mentor programs, and coordinates patient education materials. In 2012, Stacy started the Kidney Transplant Recipient Peer Mentor program at the University of Michigan and revitalized the Kidney Living Donor Peer Mentor Program and the Liver Peer Mentor program. Stacy holds an MBA from Wayne State University in Detroit, Michigan and a bachelor of arts from the University of Michigan in Ann Arbor, Michigan.
Nicole Bryant was diagnosed with an autoimmune disease as a teenager and introduced to dialysis right away. Nicole had her first kidney transplant in 1994, and shortly thereafter she joined the National Kidney Foundation's (NKFM) Peer Mentor program. Peer mentoring allowed Nicole to get awareness about kidney disease throughout Ann Arbor, Detroit, Lansing and other communities.
Nicole also worked at University of Michigan from 1996-2014 as a Medical Assistant/Patient Service Associate, later joining The Patient-and Family-Centered Care program.
Nicole had her second kidney transplant in 2002. In 2013, she returned to dialysis and was diagnosed with Congestive Heart Failure. While she awaits a heart and kidney transplant, she continues to offer speaking engagements to educate others. Nicole is also working towards her BSW/ MSW in Social Work at Eastern Michigan University.
Bryant Campbell is Patient and Family Advisor at Providence Medical Group in Portland, OR. He has served in this role for three and a half years. Bryant has been instrumental in working through many initiatives related to patient care. He has also been involved in the development of processes, procedures, and animated media communications for patient-centered medical home.
Bryant has presented the patient experience at several conferences, webinars, and forums. He was featured on the State of Oregon Health Authority's website for his involvement in this work. Bryant is currently involved in Providence's initiative to bring patient and family advisory councils into local, outpatient clinics.
Cedric Clark is a Kidney Transplant Peer Mentor for the University of Michigan Hospital Transplant Center. His role as a Peer Mentor includes providing support to patients by hospital visits and telephone calls. He shares his own transplant experiences, giving patients guidance and emotional support through the transplant process. He partakes in the Kidney Transplant Patient Education Class answering questions and telling his story. Cedric participates in Transplant Expos at dialysis centers across Michigan, speaking with patients who are considering transplant or currently on the waitlist. He is also a part of the Patient Family Advisory Council at the University of Michigan Hospital. Cedric is a trained Personal Action Toward Health (PATH) Leader Trainer for the National Kidney Foundation of Michigan, leading Chronic Kidney Disease PATH workshops. He has been recognized as 2014 Peer Mentor of the Year by the University of Michigan Transplant Center.
Eric A. Coleman
Eric A. Coleman, MD, MPH, is Professor of Medicine and Head of the Division of Health Care Policy and Research at the University of Colorado Anschutz Medical Campus. Dr. Coleman is the Director of the Care Transitions ProgramŽ which is aimed at improving quality and safety during times of care "handoffs."
Dr. Coleman was recognized with a 2012 MacArthur Fellowship for his work in bridging innovation and practice through enhancing the role of patients and family caregivers in improving the quality of their care transitions. For more information please go to www.caretransitions.org
Michelle Collis, BA, MA, in late 2008, after more than 30 years of experience as a health care marketing executive, was tapped to lead Methodist Le Bonheur Healthcare's transition to a patient- and family-centered culture. Michelle and her husband of 32 years, Alec, have a daughter and a son, both in their early 20s. Michelle's many life experiences make her familiar with, and keenly aware of, what it is like to be a patient or family member negotiating through the complex health care world of today.
Maureen Connor, RN, MPH, is a health care consultant with Claremont Consulting Partners, in Arlington, MA, focusing on quality improvement, patient safety, and patient- and family-centered care. She is the former Executive Director of Quality and Safety for Patient Care Services at North Shore Medical Center (NSMC) in Salem, MA, a member of Partners HealthCare. Prior to joining NSMC, Maureen served as Vice President for Quality Improvement and Risk Management at the Dana-Farber Cancer Institute (DFCI) and Director of Quality Improvement at the Dana-Farber/Brigham and Women's Cancer Center, Boston. She is a graduate of Boston City Hospital School of Nursing and earned her Bachelor of Science degree in Nursing from Boston College. She holds a Master of Public Health degree from the University of Massachusetts.
In the aftermath of two sentinel events at DFCI, Maureen played a major role in integrating patient safety into the culture of this academic medical center, collaborating with patients and family members from DFCI's patient and family advisory councils. She is a co-author of the consensus statement, When Things go Wrong: Responding to Adverse Events, written to support the Harvard affiliated hospitals in communicating with patients and families about errors and adverse events.
Maureen worked with the Massachusetts Coalition for the Prevention of Medical Errors to assist health care organizations throughout Massachusetts in implementing state-mandated patient and family advisory councils. In addition, she was a co-investigator of a study that measured the impact of patients' participation in Patient Safety Rounds in the ambulatory clinics at DFCI and also a study on oral chemotherapy safety in ambulatory oncology. She has presented nationally on patient- and family-centered care.
Liz Crocker, MEd, is a businesswoman, writer, teacher, and environmentalist. Liz is known as an innovator, child advocate, and supporter of the arts.
Liz has worked as a Simulated Patient and Clinical Teaching Associate with the Dalhousie School of Medicine. She is one of the founding owners of Woozles, the oldest children's bookstore in North America, co-founder of Frog Hollow Books (sold in 1987) and co-founder of a network of environmental stores called P'lovers (sold in 2014).
Liz established the Child Life Program at the IWK Children's Hospital which developed an international reputation of excellence, and was the first chair of the IWK Children's Miracle Network Telethon. She was the founding Co-Chair of the Discovery Centre (an interactive science centre) and the first President of the NS Advisory Council on the Status of Women. Liz also developed a hospital board game which originally sold under the label of Fantasy International until the production rights were sold to a U.S. company.
A life-long strong and vocal advocate for children and youth, Liz has worked as a teacher. She has also served as Chair of the Canadian Institute of Child Health, President of the Association for the Care of Children's Health, and Coordinator of the Future Quest program at the Centre for Entrepreneurship Education and Development. Liz is Vice-Chair and Board Member of the Institute for Patient- and Family-Centered Care (IPFCC) and an Honorary Trustee of the IWK Hospital Foundation. Liz is deeply committed to improving the quality and safety of health care interactions and was appointed as a Board Member to the Health Quality Council for the Province of Saskatchewan in the spring of 2013.
Liz is the author of two children's books and hundreds of articles in books, magazines, and newspapers. In 2006, along with Bev Johnson (IPFCC President/CEO), she co-authored Privileged Presence, which is a collection of stories about experiences in health care with a focus on communication, collaboration, and compassion. A second edition was published in 2014. She also edited a book entitled, The Healing Circle: Reclaiming Wholeness on the Cancer Journey, Integrating Science, Wisdom and Compassion, which was published in May 2010.
Joanne Cunningham, BS, MS, came to health care as the parent of a child with chronic health needs. Her son, Jacob, is 14 and has used Le Bonheur Children's Hospital 54 times, giving Joanne a unique perspective on the delivery of health care. In 2006, she was asked to help create and guide the first Family Partners Council for the Methodist Le Bonheur Healthcare system. Joanne's experience as the Chair for the Family Partners Council from 2007-2009 led to a paid position as the Director of Patient- and Family-Centered Care at Methodist University Hospital.
Prior to working at LeBonheur, Joanne was a public school special education teacher. She has been married to her high school sweetheart, Jeff for 16 years and also has a daughter in her 20s.
Nancy DiVenere is co-founder and past president of Parent to Parent USA, a national non-profit committed to promoting access, quality, leadership and research in parent to parent peer support nationally. Nancy was also the founder and for eighteen years, the Director of Parent to Parent of Vermont, a statewide family support organization serving children with special health care needs or disability and their families. Nancy was the recipient of the Robert Wood Johnson Foundation Community Health Leadership award in recognition of "innovative, community-based solutions to serve as national models for building healthier communities."
Nancy is member of the Board of Directors of the Institute for Patient- and Family-Centered Care.
Nancy is featured in the webinar Developing Patient- and Family-Centered Peer Support Programs.
Deborah L. Dokken, MPA, is currently a consultant to the Institute for Patient- and Family-Centered Care. Deborah's career in family advocacy grew out of her own personal experiences, including the loss of two infants due to prematurity and her husband's long battle with a rare abdominal cancer. As a result, Deborah became involved in programs that improve family support and enhance family participation in health care.
Deborah was the Associate Director of the Initiative for Pediatric Palliative Care (IPPC). She co-founded the nonprofit, community-based organization Partners in Intensive Care, and was a founding member of the Parent Partners Group at The George Washington University Hospital. Deborah has been a member of committees of the Institute of Medicine, the Food and Drug Administration, and the National Institutes of Health. At Sibley Memorial Hospital in Washington, DC, she is a member of the Patient and Family Advisory Committee. She is also co-editor of the Family Matters section of Pediatric Nursing journal, the co-author of several articles related to family-centered and pediatric health care, and has presented at many conferences.
Marlene Fondrick brings experience as a clinician and an administrator in both maternity care and pediatrics. She was formerly the Vice President for Patient Care Services at Children's Hospital in St. Paul, Minnesota. She also served as a Vice President for the two merged Children's Hospitals in the Twin Cities. For many years, she was the staff liaison to a very successful family advisory council at Children's Hospital of St. Paul.
Marlene has broad experience in perinatal settings, including serving as the Director of a perinatal center. For several years she was a facilitator for NACHRI's Focus Groups for newborn intensive care, working with neonatologists and nursing leaders on quality improvement projects. Marlene works with the Institute for Patient- and Family-Centered Care in providing on-site training and technical assistance for hospitals. She has served as a faculty member for several of the Institute's in-depth seminars. She also brings to her work with the Institute the perspectives of a deeply caring grandmother of a young child who has had cancer.
Marlene was honored as one of 100 Distinguished Graduates from the University of Minnesota at the School of Nursing's Centennial Celebration in November 2009.
Marlene is featured in the webinars Advanced Session: Sustaining and Enhancing a Patient- and Family-Advisory Council and Creating Patient and Family Advisory Councils-Getting Started.
Terry Griffin, MS, APN-BC, is a Neonatal Nurse Practitioner at St. Alexius Medical Center in Hoffman Estates, IL. She has worked at Rush University Medical Center in Chicago and has held faculty positions at the Graduate College of Nursing at the University of Illinois at Chicago. Her clinical experience is in the NICU as a staff nurse, Clinical Nurse Specialist, and most recently, as a Neonatal Nurse Practitioner; however, her specialty is patient- and family-centered care.
Terry's area of interest is the relationship among staff, patients, and families. She has published and presented on many nursing topics, including interventions that reduce stress of parents of hospitalized infants and the challenges nurses and families face caring for babies in the NICU. Her research has examined the parental response to prenatal tours of the NICU and safety of parental involvement in the care of hospitalized infants.
Terry is a member of the National Association of Neonatal Nurses and the Association of Women's Health, Obstetric, and Neonatal Nurses, and has given many years of service to the March of Dimes, Chicago Chapter.
Jill Golde is a Partner in Language of Caring. For over 15 years, Jill has been helping healthcare organizations embrace and strengthen patient- and family-centered communication. Jill brings over 20 years of experience in organizational change and the patient experience. With her appreciative focus, Jill is an inspiring, effective coach and team-builder-helping internal people plan and implement with focus, efficiency and enthusiasm.
Jill holds an M.S. in Organization Development from American University and a B.A. in Education from Washington University. For Language of Caring, Jill is responsible for Marketing and Sales and also works directly with clients on Language of Caring program implementations.
Royal Harris, QMHA, CHW, is a native Oregonian and alumnus of Concordia University. He is a Community Advisory Council member for the FamilyCare, Inc., a Coordinating Care Organization receiving Medicaid funds in the Portland, Oregon area. Royal has over 25 years of community activism and involvement starting in 1990 when he created the Portland Community College Black Student Union and extending to present day with his participation with the Family Care CAC and Multnomah County Health Birth Initiative Strategic Planning Committee. Professionally, Royal has worked in a variety of community programs as a mental health case manager and as a counselor, mentor, and advocate for at-risk youth. Royal also has his own nonprofit called the Aristotle Project. The Aristotle Project focuses on teaching young people critical thinking, leadership, and the importance of service to others. Royal is a certified community health worker and trained as a community mediator.
Beverley H. Johnson is President and Chief Executive Officer of the Institute for Patient- and Family-Centered Care in Bethesda, MD. She has provided technical assistance and consultation for advancing the practice of patient- and family-centered care to over 250 hospitals, health systems, federal, state, provincial agencies, military treatment facilities, and community organizations. She assists hospitals and ambulatory programs with changing organizational culture, facilitation of visioning retreats, and the integration of patient- and family-centered concepts in policies, programs, and practices, as well as in facility design, the education of health care professionals, and research and evaluation.
Bev served as Project Director for a multi-year initiative to develop resource materials for senior leaders in hospital, ambulatory, and long-term care settings on how to partner with patients, residents, and families to enhance the quality, safety, and the experience of care. She served as the lead author for Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: Recommendations and Promising Practices, a multi-year initiative funded by the Robert Wood Johnson Foundation and the California HealthCare Foundation. She was a co-author for the guidance publications, Developing and Sustaining Patient and Family Advisory Councils, Creating Patient and Family Faculty Programs, and Advancing the Practice of Patient- and Family-Centered Geriatric Care.
Bev is a member of the Selection Committee for the American Hospital Association-McKesson Quest for Quality Prize and the Board of Directors for the Patient-Centered Primary Care Collaborative (PCPCC). She is also a member of Premier's QUEST/PACT Advisory Panel and the American College of Physicians' Advisory Board for Patient Partnership in Healthcare.
Bev is a past recipient of the Lloyd Bentsen Award and the Humanitarian Award from Pediatric Nursing. In 2007, she received The Gravens Award for leadership in promoting optimal environments and developmental care for high-risk infants and their families, and The Changemaker Award by the Board for the Center for Health Care Design. In 2008, the National Perinatal Association presented Bev with the Stanley L. Graven Award. Most recently, she was a recipient of a Dorland Health 2011 People Award.
As a member of the Institute for Patient- and Family-Centered Care team, Joanna Kaufman, RN, MS, collaborates on a variety of projects that involve research, writing, editing, and analysis. She is a writer and editor of the Institute's newsletter, Pinwheel Pages, the Institute's website, and is a contributing writer for New Health Partnerships
Joanna is a registered nurse with more than 20 years of pediatric clinical and patient- and family-centered care experience gained in the trenches of Strong Memorial Hospital, Charity Hospital of New Orleans, and Johns Hopkins Hospital. She is the former Executive Director of a SPRANS Project (Special Project of Regional and National Significance) funded by the Department of Health and Human Services Bureau of Maternal/Child Health, and the former Vice-President of Quality Management for a managed care organization exclusively serving children with special health care needs. Joanna has served as a grant reviewer for numerous federal agencies. She was a member of the editorial advisory boards for two professional journals, serves as a reviewer for the Journal of Adolescent Medicine, and was a board member for both the Case Management Society of America and the National Association for Home Care.
In 2009, Joanna became a registered World Health Organization Patients for Patient Safety Champion.
Joanna is featured in the webinars Collaborating with Youth and Families to Create Successful Transitions to Adult Health Care and The SMART Discharge—An 'Always' Event and serves as a moderator on several other webinars.
Deborah Lafond, MS , PNP -BC, is the Nurse Coordinator of the PANDA Program, the Pediatric Palliative care Program at Children's National Medical Center in Washington, DC. Debbie has been a registered nurse for nearly 30 years. She is a nursing scholar on the Nursing Research Committee of the Children's Oncology group and is a founding member of the DC Pediatric Palliative Care Collaboration. She is a trainer for the End of Life Nursing Education Consortium—Pediatric Palliative Care Curriculum.
Debbie is featured in the webinar The Road Less Traveled: Integrating Pediatric Palliative Care and Patient- and Family-Centered Care.
Celeste Castillo Lee
Celeste Castillo Lee is the Program Manager for Patient- and Family-Centered Care at the University of Michigan Health System, Adult Services. Celeste previously served as Chief of Staff to the President and CEO of Duke University Health System and the Chancellor for Health Affairs at Duke University where she was active in patient- and family-centered care initiatives.
Celeste has lived with kidney failure for 33 years, and as a result became an impassioned advisor and advocate in Massachusetts, Michigan, North Carolina, nationally, and internationally. As a strategic consultant, leader, and member of organizations such as the Patient Centered Outcomes Research Institute, FDA public/private partnership, the Kidney Health Initiative, National Kidney Foundation, the National Kidney Foundation of Michigan, the North Carolina Task Force on Chronic Kidney Disease, and the Vasculitis Foundation. As a public speaker, Celeste speaks out on critical issues related to kidney health and outcomes for people on dialysis with end-stage renal disease, committed to addressing health disparity among patients with kidney disease. Celeste also speaks and advocates for patients to own their own health.
Wendy Leebov, EdD, a lifelong advocate for creating healing environments for patients, families, and the entire health care team, has helped hospitals and medical practices enhance the patient experience. Wendy is a Managing Partner of Language of Caring, LLC. Previously, she served as Vice President and change coach for the Albert Einstein Healthcare Network in Philadelphia and as President and CEO of the Leebov Golde Group.
A communication fanatic, Wendy has written more than ten health care books and developed The Language of Caring, a powerful, video-based skill-building system for patient- and family-centered care that dramatically improves the patient and family experience, as well as HCAHPS scores. Also, with Carla Rotering, MD, Wendy has recently launched the groundbreaking video-based program—The Language of Caring for Physicians: Communication Essentials for Patient-Centered Care.
Wendy received her Bachelor of Arts in Sociology/Anthropology from Oberlin College and her Master's and Doctorate from the Harvard Graduate School of Education.
Marie Maes-Voreis, RN, BSN, MA, is the Director of Health Care Homes with the Minnesota Department of Health/ Minnesota Department of Human Services (MDH). Marie brings 32 years of nursing and health care leadership experience to the Health Care Homes project. She is responsible for the program implementation of Health Care Homes legislation for the Minnesota Department of Health and the Minnesota Department of Human Services as a joint government private sector project.
Marie is featured in the webinar Applying Patient- and Family-Centered Concepts and Strategies to the Development of the Medical Home and the Management of Chronic Conditions.
Mary Minniti is a Certified Professional in Healthcare Quality with more than 30 years of experience in the quality improvement discipline. Her work with the Institute for Patient- and Family-Centered Care (IPFCC) began in 2003 as guest faculty for an intensive training seminar. She joined IPFCC in 2011, and is now a Senior Policy and Program Specialist. She is the lead author on a recently published Robert Wood Johnson Foundation funded report, Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations.
Mary has been actively involved in Oregon health care reform work especially related to primary care transformation. Serving on key, state committees, she has led efforts to integrate patients and families into all aspects of care transformation. Mary led a taskforce whose recommendations established the Patient Centered Primary Care Home (PCPCH) Technical Institute which serves to support clinics across Oregon in meeting PCPCH standards. As a Project Director for an Aligning Forces for Quality collaborative statewide effort on patient and family engagement, Mary provided support to a Medicaid health plan and to four primary care clinics in establishing patient and family advisory councils.
During her 16-year tenure with PeaceHealth, managing diverse cross-regional projects focused on improving the patient experience of care, Mary systematically involved patients and families in quality improvement, safety and redesign initiatives. She worked in a variety of settings leading innovation projects across the continuum of care, with an emphasis on partnerships for quality and safety. Her last PeaceHealth position was as the Quality Improvement Director for PeaceHealth Medical Group, a large multi-specialty practice in Eugene, OR. She was grant director for a Regence funded Medical Home pilot for PeaceHealth that has helped inform medical home implementation across the medical group.
Additionally, Mary was the Principal Investigator for an AHRQ funded-study on Medication Management at Home: Patient Identified Processes and Risk Assessment. Between 2001-2005, she worked as the Pursuing Perfection Project Director in the Whatcom County community to develop the vision of, and implement, a chronic care management system that is patient-centered and community-wide. Her passion is bringing patients and family members into conversations about health care transformation because of the positive and powerful impact it creates for all involved.
Julie Ginn Moretz
Inspired by her son's battle with heart disease—his multiple heart surgeries and heart transplant—Julie Ginn Moretz has spent the better part of her career as a family leader to improve health care for patients and families. Julie is the Associate Vice Chancellor for Patient- and Family-Centered Care at the University of Arkansas for Medical Sciences in Little Rock where she has overall institution leadership responsibility for the development of clinical and academic programs related to patient- and family-centered care.
Most recently, Julie was the Director of Special Projects with the Institute for Patient- and Family-Centered Care (IPFCC) for nearly seven years. She worked on a variety of projects to develop partnerships among health care professionals, patients and families, and also consulted with health care organizations throughout the country to advance the practice of patient- and family-centered care. Julie oversaw IPFCC's nationally acclaimed intensive training seminars, international conferences, and other educational programs. She has presented throughout North America and led a faculty team to Saudi Arabia to share the concepts of patient- and family-centered care.
Initially, Julie was Chair of the Family Advisory Council at the Medical College of Georgia in Augusta, and then hired as a family leader in the role of Director of Family Services Development to oversee programs supporting adult and pediatric services. This included managing advisory councils, developing the Family Faculty program to incorporate patient- and family-centered care concepts in medical education, and serving as a faculty tutor for first-year medical students.
Julie serves on the Patient-Centered Outcomes Research Institute's (PCORI) Advisory Panel on Patient Engagement - the first of its kind developed to ensure the highest patient engagement standards in PCORI's work and the research it funds. Julie is the co-founder of the Children's Heart Program, which supports special programs for children with heart disease and their families. She is a recipient of the Woman of Excellence in Health Care Award and the American Heart Association's Lifetime Achievement Award. Julie and her family were featured in the PBS remaking American Medicine series, Hand-in-Hand, where she was named "Champion of Change." Julie and her husband, David, have three children - Lee (28), Morgan (26), and Daniel, forever 14.
Lisa Morrise became involved in health care advocacy after having three children with special needs, including her daughter who was born unable to breathe or swallow. For the last twenty years Lisa has lobbied locally and nationally for health care related issues. She has advocated for improvement in pediatric palliative care, served on the Governing Board of the local early intervention program, and served on the Primary Children's Medical Center Family Advisory Council. As Patient- and Family-Centered Care Coordinator for Primary Children's, Lisa co-facilitated the Family Advisory Council and coordinated family member advisors in various positions throughout the hospital. Lisa currently serves as the Patient Co-Lead on the Patient and Family Affinity Group for the CMS National Partnership for Patients.
Lisa graduated from the University of Kansas with a Bachelor of Science in Journalism and a Master of Arts, Radio-TV-Film Management degrees. Lisa worked professionally as an on-air announcer, research-promotion-marketing specialist, account executive, and broadcast management consultant. She has taught Radio Programming, Communications, Public Speaking, and Consumer Behavior as an Adjunct Professor, and currently teaches Media Management for Brigham Young University.
Lauren Murray is the director of consumer engagement and community outreach at the National Partnership for Women & Families. In this role she leads a team working in partnership with foundations, federal government leaders, health care providers, researchers, community-based organizations, consumers and others to develop and implement strategies for improving the quality, safety, efficiency, and patient- and family-centeredness of the health care delivery system. At the heart of this work is facilitating relationships between patients, clinicians, researchers and others, as well as developing tools and resources to build capacity for and sustain effective partnerships.
Douglas Niehus, MD
Douglas Niehus, MD, is Medical Director for Patient Experience and a Clinic Medical Director for Providence Medical Group in Portland, OR. Doug has served in Family Medicine for 19 years and has been involved with the Providence Patient and Family Advisory Council since its inception. He is passionate about involving patients in decision-making and has seen first-hand the difference this makes. Working with both clinic and executive PFACs he continues to advance the patient voice to many levels of Providence Medical Group and now to the broader Providence Health and Services. It is a culture change that takes time, but they have seen a tremendous change in just the last four years. Doug looks forward to continuing this work and watching Providence Medical Group continue to transform into a patient- and family-centered care organization.
Kelly Parent is the IPFCC Program Specialist for Patient and Family Partnerships and Administrator for the PFAC Network, IPFCC's online forum. Before joining IPFCC's staff, Kelly served as faculty for IPFCC's seminars, webinars, and conferences. Additionally, Kelly has served as the first PFCC Program Manager at the University of Michigan Health System (UMHS) creating and sustaining a volunteer patient and family advisor program and PFCC culture change at executive, clinical, education, and research levels. Presently, Kelly is the UMHS PFCC Program Specialist for Quality and Safety and works to create patient and family engagement opportunities to promote high quality and safe care; build training programs for research partnerships; and develop PFCC coursework for U-M Medical School curriculum. Kelly's passion for patient- and family-centered care was established following her daughter's cancer diagnosis. She has spent time lobbying on Capitol Hill for increased funding for pediatric cancer research and health care programs for underserved children.
John Reiss, PhD, is the Director of the Health Care Transition Initiative at the University of Florida's Institute for Child Health Policy. Trained as a Counseling Psychologist, John has worked on ways to improve the organization and delivery of patient- and family-centered care for children, youth, and young adults with chronic health conditions for more than 25 years.
John is featured in the webinar Collaborating with Youth and Families to Create Successful Transitions to Adult Health Care.
Hollis Guill Ryan
Hollis Guill Ryan is the Program Coordinator of Patient and Family Centered Care at the University of Washington Medical Center where she works with patient and family advisors and the advisory councils. For two years prior to this, Hollis was a Family Advisor to the UW Medical Center and served on its Steering Committee for Patient- and Family-Centered Care, from its inception. As Program Coordinator for PFCC since 2004, she has overseen the UWMC advisory program as it has grown from three advisory councils to seven, with a complement of about 85 advisors. Hollis is responsible for recruiting, placing, and supporting the advisors who serve in a multitude of ways - including working on advisory councils; serving on hospital planning, practice, and policy committees; participating in high-level hiring interviews; consulting on facilities design; serving on a variety of task forces and focus groups; and teaching staff, residents, and physicians. She also manages a new and active e-Advisor group which consults via email communication and whose opinions are avidly sought by staff.
Hollis is uniquely qualified for this work through her personal experience as the caregiver for her grown son who has had brain cancer for 15 years, and as the caregiver for her father throughout his final illness. Her experience with health care extends back to her youth when she was a nurse's aide at Navy Medical in Bethesda, MD, and includes eight years as a congressional liaison working with the elderly and disabled. Her work and her perspective are strongly shaped by a personal inclination toward the elderly, the disabled, and the seriously ill.
Hollis has served as faculty for a dozen intensive training seminars, for the Institute for Patient and Family Centered Care (IPFCC), since 2004.
Christopher Schlaps, RA, LEED AP, NCARB, is a project manager with the Facilities Planning & Development department at the University of Michigan Health System, and has been working in the health care design industry for more than 10 years. Over the past several years, Chris and his colleagues have partnered with patients and families through the institution's PFCC Program to build a patient- and family-centered environment.
Christopher is featured in the webinar Through Their Eyes: Collaborating with Patients and Families from Hospital Design through Moving In.
Juliette Schlucter has more than two decades of experience working with and leading health care professionals in patient- and family-centered care assessment, programming design and implementation. She has consulted on patient- and family-centered topics related to quality, safety, education, research, and outcomes with numerous health care systems and agencies. Juliette continues her work by speaking, providing training, and working with teams to advance collaborative models of care. She is currently the Director of The Center for Child and Family Experience at the Sala Institute for Child and Family-Centered Care at NYU Langone Medical Center.
From 1995 through 2010, Juliette provided leadership for hospital-wide implementation of patient- and family-centered care at The Children's Hospital of Philadelphia. While at The Children's Hospital of Philadelphia, Juliette created and served as lead author of The Promise of Partnership, a toolkit used to teach health care professionals best practice behaviors for patient- and family-centered care. The Promise of Partnership was chosen by the Institute for Healthcare Improvement (IHI) for its Open School module on patient- and family-centered care. She also co-created the Family Faculty, an award-winning program in which parents teach health care professionals about the experience of illness. She established the Children's Hospital of Philadelphia Family Advisory Council, created and developed the Family-Centered Intern program, developed a Patient and Family Advisor training curriculum and founded and wrote Partners for Excellence, a workshop to teach parents about using health care resources effectively.
Juliette has served as a contributing author for numerous publications, including Partnering with Patients and Families to Design a Patient and Family Centered Health Care System; Essential Allies, A Guide for Staff Liaisons; and Words of Advice, A Guide for Patient and Family Advisors. With Bev Johnson, President/CEO of the Institute for Patient- and Family-Centered Care, Juliette co-authored the chapter on Family-Centered Home Care for The American Academy of Pediatrics.
Since 1996, Juliette has served as Faculty to IPFCC. She has also served on advisory councils for the Accreditation for Graduate Medical Schools and the Association of American Medical Colleges, and served on the board of the Association of the Care of Children's Health. Juliette came to her work, over 22 years ago, following her son and daughter's diagnosis with Cystic Fibrosis.
William Schwab, MD, is a Professor and Vice Chair of the Department of Family Medicine at the University of Wisconsin School of Medicine and Public Health where he is an active clinician and teacher. His previous administrative roles have included serving as serving as Director of Clinical Operations for the DFM, as Director of its Madison Family Medicine Residency Program, and as Director of a state-funded initiative to address the increasing shortage of physicians practicing in small communities. He is currently a member of the Board of Directors of the University of Wisconsin Medical Foundation, which is the group practice organization for the more than 1300 medical school faculty clinicians at the University of Wisconsin.
Bill has been the recipient of the Baldwin E. Lloyd, MD, Clinical Teacher of the Year Award from the University of Wisconsin Department of Family Medicine and the Educator of the Year Award from the Wisconsin Academy of Family Physicians. A nationally recognized leader in medical education about the care of children and adults with chronic illness and disabilities, Bill is a frequent speaker and consultant to health systems, medical schools, and community agencies around the country. He has been the principle investigator for the National Medical Home Autism Initiative, funded by the federal Maternal and Child Health Bureau, and the principal investigator of a project funded by the U.S. Centers for Disease Control and Prevention to enhance development screening by family physicians.
Bill has been on the teaching faculty of more than 30 intensive training seminars presented by the Institute for Patient- and Family-Centered Care (IPFCC) on advancing patient- and family-centered care in medical education, community services, ambulatory health care, and hospitals. He is also an officer of the Board of Directors of IPFCC.
Leilani Schweitzer, Patient Liaison, Stanford University Medical Center, did not choose a career in health care; it chose her. Ten years ago her son died after a series of medical mistakes, now she works in Risk Management at the same hospital where those errors happened. In her work with Stanford Healthcare's Risk Management, she uses her own experience with medical errors to navigate between the often insular, legal, and administrative sides of medical error; and the intricate, emotional side of the patient and family experience. Her work with The Risk Authority Stanford gives her a unique view of the importance and complex realities of disclosure and transparency in health care.
Terrell Smith, MSN, RN, is the Director of Patient- and Family-Centered Care for Vanderbilt University Medical Center. Terrell began her career as a pediatric intensive care unit nurse at The Children's Hospital of Alabama and she has served in Brazil as a Peace Corps volunteer. Terrell has held leadership positions at Children's Hospital of Alabama and Ochsner Hospital in New Orleans. She was Administrative Director/Director of Nursing at Vanderbilt Children's Hospital for thirteen years before assuming her current position in 2005.
Terrell received her undergraduate degree at Samford University in Birmingham, AL, and her graduate degree from the University of Alabama in Birmingham.
Terrell is featured in the webinar Patient and Family-Centered Care in Adult ICU's.
Perry Spencer, MS, CPP, CHPA, has worked in the University of Michigan Hospitals and Health Centers (UMHHC) Security and Entrance Services Department since 1997. In 1999, he was named the Department's Manager of Uniform Operations, and in May of 2015 was appointed as the Interim Director, Health System and Hospitals Security, University of Michigan-Division of Public Safety and Security. Prior to that, Perry served 20 years in the United States Air Force Security Police, retiring in 1995. Perry was an early proponent of patient- and family-centered care at the UMHHC and was selected to sit on the C.S. Mott Children's and Women's Von Voigtlander's Hospitals PFCC Committee when it was formed in 2005. He was co-chair of the committee that authored the Family Presence and Visitation policy. He is an original member of the UMHHC's Cardiovascular Center PFCC Committee and was appointed to the C.S. Mott and Women's Von Voigtlander's Hospitals PFCC Executive Committee.
Perry has been an advocate of patient- and family-centered care in the health care security world authoring two articles on Security's role in patient- and family-centered care in the International Association of HealthCare Security and Safety's professional journal, Protection. He has presented at the Association's Annual General Membership Meeting on the topic. Perry has incorporated patient- and family-centered care training as a staple of his security team's core competencies and has infused PFCC core principles into his team's daily operations. In 2010, Perry was the recipient of the Annual HOPE Award recognizing him for his ongoing commitment to patient- and family-centered culture change at the University of Michigan Health System.
Perry holds a Bachelor of Science degree from Park University, Parkville, MO in Management and a Master of Science Degree in International Relations from Troy University, Troy, AL. He is a Certified Protection Professional through ASIS International and a Certified Healthcare Protection Administrator by the International Association of Healthcare Security and Safety.
Yeng Yang, MD, is an Internal Medicine/ Pediatric physician at Fairview Medical Group and the Chair of the Pediatric Department at Maple Grove Hospital in Minnesota. She is a physician champion for the Health Care Home/Medical Home for Fairview Medical Group. Yeng's professional interest is in reinventing primary care in the context of patient- and family-centered care. She has been involved in this work since 2006 and is proud that her organization has achieved Health Care Home/Medical Home certification. Yeng has worked with the MN Department of Health and Family Voices in their efforts to help other clinics in their efforts gain medical home certification.
Yeng is featured in the webinar Applying Patient- and Family-Centered Concepts and Strategies to the Development of the Medical Home and the Management of Chronic Conditions.