Marie Abraham is a Senior Policy and Program Specialist for the Institute for Patient- and Family-Centered Care. Since joining the Institute in 1996, her work has included providing consultation to hospitals and ambulatory care practices, assisting with the development of resource materials, co-authoring publications, and serving as a planner and faculty member for Institute conferences, seminars, and other training efforts. Over the past decade, Marie has served as a consultant for the Vermont Oxford Network, an international collaborative committed to improving the safety and quality of care for newborn infants and their families. Marie has also worked on several national quality improvement initiatives focusing on maternity and normal newborn care and primary care for children and adults with chronic conditions.
Prior to joining the Institute, Marie worked as a direct service provider to young children and their families and as a trainer of trainers in the field of early childhood special education. She holds an undergraduate degree in Psychology and received her master's degree in Early Childhood Special Education from The George Washington University. Marie also brings personal perspective and passion to her work. Marie lives in Connecticut with her three sons, one of whom required intensive therapy and early intervention for his first six years.
Marie is featured in the webinars Hospitals and Communities Advancing Patient- and Family- Centered Care: A Beginner's Guide and Patient- and Family-Centered Approaches in Transitions from NICU/PICU to Home and serves as a moderator on several other webinars.
Kristina Andersen, BSN, RN, SMART Discharge Project Coordinator, was initially hired at Anne Arundel Medical Center in 2002 as a new graduate nurse for the Joint and Spine Center. In 2004, she was selected to perform the role of charge nurse on an interim basis, but quickly earned the title of Unit Charge Nurse. In that role, Kristina served on various unit and hospital committees and councils, including Chair for the hospital-wide Charge Nurse committee. Most recently, she was selected to serve as Project Coordinator for the SMART Discharge protocol, an initiative funded by a Picker Institute grant. In this position, she works with patients, families, and hospital staff to develop, coordinate, and initiate the SMART discharge protocol.
Kristina is featured in the webinar The SMART Discharge—An 'Always' Event
Kelly Barmer became a peer visitor after her husband, JP, was paralyzed in a motorbike accident in 2006. After sustaining a T4 complete spinal cord injury along with a Traumatic Brain Injury, JP spent over a year involved in inpatient and outpatient rehabilitation. JP overcame many obstacles and defied medical odds in many ways with his recovery. JP became one of the first peer visitors at Vanderbilt as a way to give back and help others in similar situations. Kelly was also trained and together they became the first husband/wife peer visiting team at Vanderbilt. Aside from peer visiting, Kelly works for Alive Hospice, Inc. as an Account Executive where her role is to educate doctors, nurses, case managers, and social workers on end-of-life care. She and JP have an 8-month-old daughter, Reagan.
Kelly is featured in the webinar Patient and Family-Centered Care in Adult Critical Care Units.
Patty Black graduated with a degree in Business Management with an emphasis on organizational behavior, theory, and design. She used this education to help develop a county-wide project that trained and supported pastoral care-teams to provide both assessment and support for individuals and families confronting life crises. Upon receiving less than adequate health care that resulted in life threatening experiences, she has developed a passion for the patient/provider partnership and the voice of the patient. She has served on the Oregon State Task Force on Patient-Centered Primary Care Home Standards implementation as well as the PCPCH Drafting the Rule into Law Committee. She is an IHI National Patient Advocate and has participated as a keynote presenter in the Oregon Health Care Quality Corporation's Learning from the Best: Patient Engagement and Leadership. Patty presented at a statewide conference, Place Matters: Working Together to Create Healthy Communities,and spoke at The Value of Story, Aligning Forces for Quality Consumer Representative Meeting, San Francisco. She is the Program Coordinator for the Patient Advisory Council for PeaceHealth Medical Group in Eugene, OR. Additionally, Patty has served on a regional network of care project for cancer navigation. Patty is passionate about gardening, mostly ornamentals, cats, and the game of tennis.
Patty is featured in the webinar Preparing for Collaboration with Patient and Family Advisors.
Paul Boucher, MD, is an Intensive Care Physician and has been in practice since 2000. He is the Medical Director of the Cardiovascular ICU at the Foothills Hospital in Calgary, Canada. He has been the Co-Chair of the Patient- and Family-Centered Care Committee for the past three years. Community members and a wide variety of professionals serve on this committee which is tasked with improving the quality of care in the adult intensive care units in Calgary through quality improvement projects surrounding end-of-life care and patient and family satisfaction.
Paul is featured in the webinar Engaging Patients and Families and the Community as Partners in Patient Safety.
Eric A. Coleman
Eric A. Coleman, MD, MPH, is Professor of Medicine and Head of the Division of Health Care Policy and Research at the University of Colorado Anschutz Medical Campus. Dr. Coleman is the Director of the Care Transitions ProgramŽ which is aimed at improving quality and safety during times of care "handoffs."
Dr. Coleman was recognized with a 2012 MacArthur Fellowship for his work in bridging innovation and practice through enhancing the role of patients and family caregivers in improving the quality of their care transitions. For more information please go to www.caretransitions.org
Michelle Collis, BA, MA, in late 2008, after more than 30 years of experience as a health care marketing executive, was tapped to lead Methodist Le Bonheur Healthcare's transition to a patient- and family-centered culture. Michelle and her husband of 32 years, Alec, have a daughter and a son, both in their early 20s. Michelle's many life experiences make her familiar with, and keenly aware of, what it is like to be a patient or family member negotiating through the complex health care world of today.
Kathy Conaboy is a full-time Family Consultant with The Children's Hospital of Philadelphia (CHOP). Kathy serves as a strategic partner and ally to the institution. In her role, Kathy brings the family voice to strategic operating committees, projects, and initiatives across the organization in support of the hospital's mission and commitment to advancing patient- and family-centered care and improving patient safety. She is also a key leader in promoting the overall patient and family experience by sharing her son's story as a longtime patient at CHOP. Kathy realized the importance of the patient- and family-centered team approach to medical care and the critical role it played in her son's recovery.
Kathy Conaboy is featured in the webinar Responding to Medical Errors in a Patient- and Family-Centered Environment.
Maureen Connor, RN, MPH, has served as the Executive Director of Quality and Safety for Patient Care Services at North Shore Medical Center (NSMC) in Salem, MA and Vice President for Quality Improvement and Risk Management at the Dana-Farber Cancer Institute (DFCI). Maureen played a major role in integrating patient safety into the culture of DFCI, collaborating with patients and family members from DFCI's patient and family advisory councils on both infection control and patient safety issues. She worked with the MA Coalition for the Prevention of Medical Errors to assist health care organizations throughout the Commonwealth in implementing state mandated patient and family advisory councils. Maureen was a co-author of the publication, When Things go Wrong: Responding to Adverse Events, a consensus statement of the Harvard affiliated hospitals regarding communicating with patients about errors and adverse events.
Maureen is featured in the webinar Responding to Medical Errors in a Patient- and Family-Centered Environment.
Liz Crocker is a successful businesswoman, author, teacher, environmentalist, and health care advocate. She consults with hospitals in Canada and the U.S., and serves as a Simulated Patient and Clinical Teaching Associate with the Dalhousie School of Medicine. Liz established the Child Life Program at the IWK Children's Hospital which developed an international reputation of excellence. She is a life-long strong and vocal advocate for children and youth and has served as Chair of the Canadian Institute for Child Health and President of the Association for the Care of Children's Health. Liz has presented on the topic of patient- and family-centered communication at Institute seminars.
Liz is featured in the webinar Enhancing Patient- and Family-Centered Communication at the Bedside and Beyond.
Joanne Cunningham, BS, MS, came to health care as the parent of a child with chronic health needs. Her son, Jacob, is 14 and has used Le Bonheur Children's Hospital 54 times, giving Joanne a unique perspective on the delivery of health care. In 2006, she was asked to help create and guide the first Family Partners Council for the Methodist Le Bonheur Healthcare system. Joanne's experience as the Chair for the Family Partners Council from 2007-2009 led to a paid position as the Director of Patient- and Family-Centered Care at Methodist University Hospital.
Prior to working at LeBonheur, Joanne was a public school special education teacher. She has been married to her high school sweetheart, Jeff for 16 years and also has a daughter in her 20s.
Nancy DiVenere is co-founder and past president of Parent to Parent USA, a national non-profit committed to promoting access, quality, leadership and research in parent to parent peer support nationally. Nancy was also the founder and for eighteen years, the Director of Parent to Parent of Vermont, a statewide family support organization serving children with special health care needs or disability and their families. Nancy was the recipient of the Robert Wood Johnson Foundation Community Health Leadership award in recognition of "innovative, community-based solutions to serve as national models for building healthier communities."
Nancy is member of the Board of Directors of the Institute for Patient- and Family-Centered Care.
Nancy is featured in the webinar Developing Patient- and Family-Centered Peer Support Programs.
Deborah Dokken, MPA, is the former Associate Director of The Initiative for Pediatric Palliative Care. A bereaved parent, she has been involved in a number of programs that improve family support and enhance family participation in health care. Deborah serves on the PANDA and Ethics committees at Children's National Medical Center in Washington, DC.
She was a reviewer for the IOM report, When Children Die, and served for three years on the FDA's Pediatric Advisory Committee.
Deborah is featured in the webinar The Road Less Traveled: Integrating Pediatric Palliative Care and Patient- and Family-Centered Care.
Marlene Fondrick brings experience as a clinician and an administrator in both maternity care and pediatrics. She was formerly the Vice President for Patient Care Services at Children's Hospital in St. Paul, Minnesota. She also served as a Vice President for the two merged Children's Hospitals in the Twin Cities. For many years, she was the staff liaison to a very successful family advisory council at Children's Hospital of St. Paul.
Marlene has broad experience in perinatal settings, including serving as the Director of a perinatal center. For several years she was a facilitator for NACHRI's Focus Groups for newborn intensive care, working with neonatologists and nursing leaders on quality improvement projects. Marlene works with the Institute for Patient- and Family-Centered Care in providing on-site training and technical assistance for hospitals. She has served as a faculty member for several of the Institute's in-depth seminars. She also brings to her work with the Institute the perspectives of a deeply caring grandmother of a young child who has had cancer.
Marlene was honored as one of 100 Distinguished Graduates from the University of Minnesota at the School of Nursing's Centennial Celebration in November 2009.
Marlene is featured in the webinars Advanced Session: Sustaining and Enhancing a Patient- and Family-Advisory Council and Creating Patient and Family Advisory Councils-Getting Started.
Terry Griffin is a Neonatal Nurse Practitioner at St. Alexius Medical Center in Hoffman Estates, IL. Terry is a member of the National Association of Neonatal Nurses and the Association of Women's Health, Obstetric, and Neonatal Nurses, and has given many years of service to the March of Dimes, Chicago Chapter.
Terry has published and presented on many nursing topics, including interventions that reduce stress of parents of hospitalized infants and the challenges nurses and families face caring for babies in the NICU. Her research has examined the parental response to prenatal tours of the NICU and safety of parental involvement in the care of their hospitalized infants.
Terry is featured in the webinars Applying Patient- and Family-Centered Concepts in Dealing with Challenging Situations with Patients and Families, Changing the View that Families are Visitors—Strategies that Support Family Presence in Newborn Intensive Care and Pediatric Settings, Enhancing Patient- and Family-Centered Communication at the Bedside and Beyond, Patient and Family Involvement in Change of Shift Report, and Patient- and Family-Centered Approaches in Transitions from NICU/PICU to Home.
Bev Johnson is the President and Chief Executive Officer of the Institute for Patient- and Family-Centered Care. Bev offers 25 years of experience in leading non-profit organizations. She has clinical and administrative experience in an academic medical center and has served as a hospital trustee and a trustee for other organizations. She has provided technical assistance and consultation to over 250 hospitals, federal, state, and provincial agencies, and community organizations. She is a mother of four children, two are writers and two are health care professionals. She also has six grandsons and one granddaughter.
Bev is featured on the webinars Advancing the Practice of Patient- and Family-Centered Care: The Role of Leaders and Patient- and Family-Centered Practice: Practical Approaches to Measuring Outcomes.
As a member of the Institute for Patient- and Family-Centered Care team, Joanna Kaufman, RN, MS, collaborates on a variety of projects that involve research, writing, editing, and analysis. She is a writer and editor of the Institute's newsletter, Pinwheel Pages, the Institute's website, and is a contributing writer for New Health Partnerships
Joanna is a registered nurse with more than 20 years of pediatric clinical and patient- and family-centered care experience gained in the trenches of Strong Memorial Hospital, Charity Hospital of New Orleans, and Johns Hopkins Hospital. She is the former Executive Director of a SPRANS Project (Special Project of Regional and National Significance) funded by the Department of Health and Human Services Bureau of Maternal/Child Health, and the former Vice-President of Quality Management for a managed care organization exclusively serving children with special health care needs. Joanna has served as a grant reviewer for numerous federal agencies. She was a member of the editorial advisory boards for two professional journals, serves as a reviewer for the Journal of Adolescent Medicine, and was a board member for both the Case Management Society of America and the National Association for Home Care.
In 2009, Joanna became a registered World Health Organization Patients for Patient Safety Champion.
Joanna is featured in the webinars Collaborating with Youth and Families to Create Successful Transitions to Adult Health Care and The SMART Discharge—An 'Always' Event and serves as a moderator on several other webinars.
Deborah Lafond, MS , PNP -BC, is the Nurse Coordinator of the PANDA Program, the Pediatric Palliative care Program at Children's National Medical Center in Washington, DC. Debbie has been a registered nurse for nearly 30 years. She is a nursing scholar on the Nursing Research Committee of the Children's Oncology group and is a founding member of the DC Pediatric Palliative Care Collaboration. She is a trainer for the End of Life Nursing Education Consortium—Pediatric Palliative Care Curriculum.
Debbie is featured in the webinar The Road Less Traveled: Integrating Pediatric Palliative Care and Patient- and Family-Centered Care.
Wendy Leebov, EdD, a lifelong advocate for creating healing environments for patients, families, and the entire health care team, Wendy Leebov, EdD, has helped hospitals and medical practices enhance the patient experience. Wendy is president and CEO of the Leebov Golde Group. Previously, she served as Vice President and change coach for the Albert Einstein Healthcare Network in Philadelphia.
A communication fanatic, Wendy has written more than ten health care books and developed The Language of Caring, a powerful, video-based skill-building system for patient- and family-centered care that dramatically improves the patient and family experience, as well as HCAHPS scores. Also, with Carla Rotering, MD, Wendy has recently launched the groundbreaking video-based program—The Language of Caring for Physicians: Communication Essentials for Patient-Centered Care.
Wendy received her Bachelor of Arts in Sociology/Anthropology from Oberlin College and her Master's and Doctorate from the Harvard Graduate School of Education.
Wendy is featured in the webinar Communication Essentials for Patient- and Family-Centered Care.
Marie Maes-Voreis, RN, BSN, MA, is the Director of Health Care Homes with the Minnesota Department of Health/ Minnesota Department of Human Services (MDH). Marie brings 32 years of nursing and health care leadership experience to the Health Care Homes project. She is responsible for the program implementation of Health Care Homes legislation for the Minnesota Department of Health and the Minnesota Department of Human Services as a joint government private sector project.
Marie is featured in the webinar Applying Patient- and Family-Centered Concepts and Strategies to the Development of the Medical Home and the Management of Chronic Conditions.
Mary Minniti, CPHQ, Program and Resource Specialist, Institute for Patient- and Family-Centered Care, provides onsite training and technical assistance to health care organizations, develops publications and resources, and serves as faculty for the Institute's seminars and conferences. Previously, Mary was the Quality Director for PeaceHealth Medical Group, and served as the Project Leader for an Oregon initiative called Patients and Families as Leaders. During that time, she has directed the implementation of a Medical Home model as well as coached primary care practices in establishing patient and family advisor programs. She worked directly with patients, families, staff, and health care providers for 17 years to improve quality and safety in hospital, clinic, and community settings. She brings experience in developing effective strategies in medical home implementation with patients, families, and clinic staff.
Mary is featured in the webinars A Beginner's Guide to the Role of Measurement in Patient- and Family-Centered Practice and Keeping the Patient and Family in a Patient-Centered Medical Home Transformation.
Julie Ginn Moretz
Julie Ginn Moretz, of Augusta, GA, is the Director of Special Projects at the Institute for Patient- and Family-Centered Care and works on a variety of projects to develop partnerships among health care professionals, patients, and families. Before joining the Institute, Julie was the Director of Family Services Development at MCG Health and the Associate Director of the MCG Center for Patient- and Family-Centered Care.
Inspired by her youngest son's battle with heart disease—his multiple heart surgeries and heart transplant—Julie worked with MCG hospital administrators to create a patient- and family-centered environment. In addition to overseeing six departments that supported patient- and family-centered initiatives, she also managed the health system's patient and family advisory councils which provided input in hospital programs to enhance quality and safety. Julie developed the MCG Family Faculty program to incorporate patient- and family-centered care concepts in medical education. She was a faculty tutor for first-year medical students in Essentials of Clinical Medicine as well as the Communication Skills Lab.
Julie and her family were featured in the PBS Remaking American Medicine series, Hand-in-Hand, where she was named a "Champion of Change." Julie, and her husband, David, have three children—two recent college graduates and Daniel, forever 14.
Julie is featured in the webinars Advanced Session: Sustaining and Enhancing a Patient- and Family-Advisory Council, Changing the View that Families are Visitors—Strategies that Support Family Presence in Newborn Intensive Care and Pediatric Settings, Creating Patient and Family Advisory Councils—Getting Started, and Hospitals and Communities Advancing Patient- and Family-Centered Care: A Beginner's Guide.
Lisa Morrise became involved in health care advocacy after having three children with special needs, including her daughter who was born unable to breathe or swallow. For the last twenty years Lisa has lobbied locally and nationally for health care related issues. She has advocated for improvement in pediatric palliative care, served on the Governing Board of the local early intervention program, and served on the Primary Children's Medical Center Family Advisory Council. As Patient- and Family-Centered Care Coordinator for Primary Children's, Lisa co-facilitated the Family Advisory Council and coordinated family member advisors in various positions throughout the hospital. Lisa currently serves as the Patient Co-Lead on the Patient and Family Affinity Group for the CMS National Partnership for Patients.
Lisa graduated from the University of Kansas with a Bachelor of Science in Journalism and a Master of Arts, Radio-TV-Film Management degrees. Lisa worked professionally as an on-air announcer, research-promotion-marketing specialist, account executive, and broadcast management consultant. She has taught Radio Programming, Communications, Public Speaking, and Consumer Behavior as an Adjunct Professor, and currently teaches Media Management for Brigham Young University.
Kelly Parent, BS, PFCC Program Coordinator, University of Michigan, C.S. Mott Children's Hospital and Von Voigtlander Women's Hospital, is the mother of two children, a son who had several surgeries as an infant and a daughter who has been treated for pediatric cancer. With these experiences, Kelly became a volunteer family advisor at the University of Michigan, C.S. Mott Children's Hospital and was subsequently hired as the Children's and Women's PFCC Program Manager.
Kelly is featured in the webinar Through Their Eyes: Collaborating with Patients and Families from Hospital Design through Moving In and The Roles of Patients, Families, and the Community in Patient Safety: Innovation and Best Practices.
John Reiss, PhD, is the Director of the Health Care Transition Initiative at the University of Florida's Institute for Child Health Policy. Trained as a Counseling Psychologist, John has worked on ways to improve the organization and delivery of patient- and family-centered care for children, youth, and young adults with chronic health conditions for more than 25 years.
John is featured in the webinar Collaborating with Youth and Families to Create Successful Transitions to Adult Health Care.
Hollis Guill Ryan
Hollis Guill Ryan is the Coordinator of University of Washington Medical Center's Patient and Family Centered Care (PFCC) program, and works with Patient and Family Advisors and the advisory councils. For two years prior to this position, she was a Family Advisor to the UW Medical Center, serving on its Steering Committee for Patient and Family Centered Care since its inception.
As Program Coordinator for PFCC since 2004, she has overseen the UWMC advisory program as it has grown from three advisory councils to seven, with a complement of about 85 Advisors. Hollis is responsible for recruiting, placing, and supporting the Advisors who serve in a multitude of ways—including working on advisory councils; serving on hospital planning, practice, and policy committees; participating in high-level hiring interviews; consulting on facilities design; serving on a variety of task forces and focus groups; and teaching staff, residents, and physicians. She also manages a new and active e-Advisor group which consults via email communication and whose opinions are avidly sought by staff.
Since 2004, Hollis has served on the teaching faculty of a dozen intensive seminars presented by the Institute for Patient- and Family-Centered Care.
Hollis is uniquely qualified through her personal experience as the caregiver for her grown son who has had brain cancer for 14 years, and as the caregiver for her father throughout his final illness. Her experience with health care extends back to her youth when she was a nurse's aide at Navy Medical in Bethesda, MD, and includes eight years as a congressional liaison working with the elderly and disabled. Her work and her perspective are strongly shaped by a personal inclination toward the elderly, the disabled, and the seriously ill.
Christopher Schlaps, RA, LEED AP, NCARB, is a project manager with the Facilities Planning & Development department at the University of Michigan Health System, and has been working in the health care design industry for more than 10 years. Over the past several years, Chris and his colleagues have partnered with patients and families through the institution's PFCC Program to build a patient- and family-centered environment.
Christopher is featured in the webinar Through Their Eyes: Collaborating with Patients and Families from Hospital Design through Moving In.
Juliette Schlucter, BS, has over two decades' experience in patient-and family-centered care assessment, design and implementation with a focus on quality, safety, education and the patient and family experience. Currently, Juliette serves as the Director of The Center for Child and Family Experience for the Sala Institute for Child and Family-Centered Care at NYU Langone. From 1995 through 2010, Juliette provided leadership for hospital-wide implementation of patient- and family-centered care at The Children's Hospital of Philadelphia.
Juliette has served as author and co-author for numerous publications and serves as faculty and consultant to the Institute- for Patient- and Family-Centered Care, leading workshops and developing action plans with health care leaders. She has served on advisory councils for the Accreditation for Graduate Medical Schools and the Association of American Medical Colleges to develop core patient and family-centered medical education competencies. Juliette came to the work first as a Family Advisor, 24 years ago, after her second born son and newborn daughter were diagnosed with Cystic Fibrosis.
Bill Schwab, MD, is a Professor and Vice Chair of the Department of Family Medicine at the University of Wisconsin School of Medicine and Public Health. In addition to being an active clinician and teacher, he has served as Director of Clinical Operations for the DFM, and as Director of its Madison Family Medicine Residency Program. He serves as a member of the Board of Directors of the University of Wisconsin Medical Foundation, the group practice organization for the more than 1200 medical school faculty clinicians at the University of Wisconsin. He is a nationally recognized leader in medical education about the care of children and adults with chronic illness and disabilities. Bill is an officer of the Board of Directors for the Institute for Patient- and Family-Centered Care (IPFCC) and serves as faculty for IPFCC to advance patient- and family-centered care in medical education, community services, ambulatory health care, and hospitals
Leilani Schweitzer did not choose a career in health care, it chose her. Nearly nine years ago, her son died after a series of medical mistakes. Now she works in risk management at the same hospital where those errors occurred. As a Patient Liaison for Stanford University Hospital & Clinic's Risk Management, Leilani uses her own experience with medical errors to navigate between the often insular, legal, and administrative sides of medical error and the emotional side of the patient and family experience. Leilani's work at Stanford gives her a unique view of the importance and complex realities of disclosure and apology.
Terrell Smith, MSN, RN, is the Director of Patient- and Family-Centered Care for Vanderbilt University Medical Center. Terrell began her career as a pediatric intensive care unit nurse at The Children's Hospital of Alabama and she has served in Brazil as a Peace Corps volunteer. Terrell has held leadership positions at Children's Hospital of Alabama and Ochsner Hospital in New Orleans. She was Administrative Director/Director of Nursing at Vanderbilt Children's Hospital for thirteen years before assuming her current position in 2005.
Terrell received her undergraduate degree at Samford University in Birmingham, AL, and her graduate degree from the University of Alabama in Birmingham.
Terrell is featured in the webinar Patient and Family-Centered Care in Adult ICU's.
Yeng Yang, MD, is an Internal Medicine/ Pediatric physician at Fairview Medical Group and the Chair of the Pediatric Department at Maple Grove Hospital in Minnesota. She is a physician champion for the Health Care Home/Medical Home for Fairview Medical Group. Yeng's professional interest is in reinventing primary care in the context of patient- and family-centered care. She has been involved in this work since 2006 and is proud that her organization has achieved Health Care Home/Medical Home certification. Yeng has worked with the MN Department of Health and Family Voices in their efforts to help other clinics in their efforts gain medical home certification.
Yeng is featured in the webinar Applying Patient- and Family-Centered Concepts and Strategies to the Development of the Medical Home and the Management of Chronic Conditions.