Successful, long-lasting partnerships don’t just happen. Our project researchers and patient and family advisors (PFAs) agree, it takes planning, resourcefulness, and determination to build effective partnerships, but the reward is well worth the effort. Summarized below are engagement principles developed by the Patient-Centered Outcomes Research Institute (PCORI) for you to consider building:

  • Reciprocal relationships through collaboratively defining roles and decision-making responsibilities of all partners
  • Co-learning through establishing a plan and budget for education of all partners about the research process, patient centeredness, and engagement strategies
  • Partnership through valuing the time and contributions by making realistic requests for participation and compensating PFAs appropriately
  • Trust, Transparency, Honesty through promoting inclusive and transparent decision-making and open and honest communication

In this section, you’ll find fundamental strategies that our project partners found most helpful in developing vibrant, productive partnerships.

John Lind and Nathaniel Warren


John Lind, Patient Advisor, and Nathaniel Warren, Research Associate, both from OCHIN, Inc., reflect on sustainability of research partnerships.