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Annual Reports of Patient and Family Advisory Councils and Committees

Family Partners Council, Le Bonheur Children's Hospital — 2011 coverAn Advisory Council and Committee annual report is a comprehensive report on the group's activities and accomplishments from the preceding year for the organization, whether it is a hospital, health system, ambulatory program or the long-term care community. Annual reports are intended to give organizational leaders and other interested people information about the collaborative endeavors and organizational activities and to help them understand the Council's and Committee's future direction.

Leaders can set the expectation that a report on the activities of advisors and the process for collaboration will be submitted annually at a minimum. The annual report should track, measure, and celebrate the work of these advisors. The report, if done well, can serve as an educational tool for leaders, health care professionals, and the community. It can also be useful in recruiting advisors. An annual report might include the following:

  • The number of patient, resident, and family advisors, as well as their roles, activities, and number of hours served. These hours can be equated to staff FTEs to show the impact that advisors can have on the organization's overall workforce capacity. Report the baseline number of advisors and growth over the year.
  • The number and type of clinical areas involving patient, resident, and family advisors.
  • The number of staff involved in collaborative endeavors, and their disciplines and departments.
  • Names of committees, task forces, and quality improvement teams where patients, residents, and families serve as advisors or in leadership positions (include number of advisors for each workgroup).
  • Photographs (or scans) or videos of products, activities, changes in physical spaces to illustrate the story of collaboration.
  • Issues identified and how they were addressed, products developed, classes taught, peer support programs coordinated, and other activities. Describe issues, materials, activities, and outcomes (when available). Include any data on financial savings as a result of changes made.
  • LeBonheur Advisors

  • Meetings held with community leaders, government agencies, potential funders, accreditors, and others.
  • Summary evaluations of classes for patients, residents, families, students, staff, physicians, and new employees. Also include:
    • Number that participated in classes.
    • Quotes or short testimonials from participants in the classes.
    • Summary of stories that they shared.
  • Listing of all the tangible products developed collaboratively.
  • Media activities where advisors are featured, including internal publications, as well as community, state, or national features.

    Excerpted From:
    Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities

There is no one right way to develop an Annual Report; here for your consideration are a number of examples of Annual Reports of Patient and Family Advisory Committees.

Tree House; A Place for Families

Tree House; A Place for Families

Baystate Children's Hospital Patient and Family Advisory Council

Beth Israel Deaconess Medical Center Patient and Family Advisory Council

Brigham and Women's Hospital Center for Patients and Families

Bronson Patient and Family Advisory Council

Children's Hospital Eastern Ontario

Children's Mercy Hospitals & Clinics Kansas City

Dana-Farber Cancer Institute, Boston, MA

Hebrew Home of Greater Washington, DC Family Council

Health Care for All, Massachusetts

Intermountain Primary Children's Medical Center, Salt Lake City, UT

BC (Vancouver) Children's Hospital Advisors

Kingston (Ontario, Canada) General Hospital's Patient and Family Advisory Council

Le Bonheur Children's Hospital - Family Partners Council

Massachusetts General Hospital, Boston, MA

Methodist Le Bonheur Children's Hospital, Memphis, TN

MultiCare Health System, Tacoma, WA

North York General, Toronto, ON, Canada

The Ottawa Hospital Cancer Program, Ottawa, Ontario, Canada

Advisory committee from the BC Children's Hospital

Advisory committee from the BC Children's Hospital

Partners in Care - The Family Advisory to BC Children's Hospital, Vancouver, BC, Canada

Perham Health, Perham MN

Progress West HealthCare Center, O'Fallon, MO

Riley Hospital for Children, Indianapolis, IN

Sibley Memorial Hospital, Bethesda, MD

South Shore Hospital, South Weymouth, MA

Spectrum Health, Grand Rapids, MI

Suburban Hospital, Bethesda, MD

Thunder By Regional Health Sciences Centre, Thunder Bay, Ontario, Canada

The Valley Hospital, Ridgewood, NJ

Winchester Hospital, Winchester, MA