Action Pact, Inc
Action Pact, Inc. is a firm that works with nursing homes and other elder organizations, assisting them in becoming more resident-directed. They promote change in two important ways: (1) encouraging the creation of collaborative organizational structures; and (2) facilitating the development of small, familiar communities which provide more opportunities for elders to care for themselves, make decisions, and have control over their daily lives. They encourage the involvement of residents and their families in all change processes.
American Academy of Pediatrics
AAP is dedicated to improving the overall health of infants, children, and adolescents. It offers information on a variety of health care topics, several related to the practice of patient- and family-centered care. IFCC partnered with the AAP to develop a policy statement, Family-Centered Care and the Pediatrician's Role. In addition, the AAP states clearly that family-centered practice is a key component in the delivery of medical care for children with special needs in their Medical Home Policy Statement, and on the website for the National Center for Medical Home Initiatives.
American Association of Critical Care Nurses
AACN provides leadership and resources to their members to improve health care for critically ill patients and their families. Core concepts of patient- and family-centered are integrated throughout their practice guidelines. The AACN has developed the Synergy Model for Patient Care and integrated it into their certification credentialing program. The Synergy Model views patients and families as active participants in care and decision-making.
American Hospital Association
The AHA is the premier membership organization for U.S. hospitals and provides leadership and advocacy for member hospitals to improve care for patients and their families. IFCC collaborated with AHA to develop the toolkit, Strategies for Leadership: Patient- and Family-Centered Care. This toolkit provides a practical resource for leaders wishing to learn about and advance the practice of patient- and family-centered care. The AHA furthers its commitment to advancing patient- and family-centered care by incorporating core principles into the criteria for the McKesson Quest for Quality Prize.
Funded through the Robert Wood Johnson Foundation, several centers within Dartmouth-Hitchcock Medical Center, in New Hampshire, have been collaborating on exploring health care improvement through the lens of the clinical microsystem model. Their belief is that the quality of an entire organization is no better that the care received by individual patients and families within an organization's discrete units. The website offers information and resources and includes examples of how different organizations across the world are applying the model.
The Commonwealth Fund
This foundation offers researchers, leaders, and policy makers an opportunity to learn about current research on health and social policy. The publication, Mirror, Mirror on the Wall: Looking at the Quality of American Health Care Through the Patient's Eyes, offers readers an in-depth look at the patient's experience of care.
The Eden Alternative
The Eden Alternative is changing the experience of aging and disability across America and around the world. Through its education and guidance resources, it seeks to eliminate loneliness, helplessness, and boredom by promoting dynamic, humanistic, and engaging environments supportive of caring relationships.
Health Research and Educational Trust
Affiliated with the American Hospital Association, HRET supports research and education for health care consumers, professionals, and institutions. The organization's efforts focus on community health, health care coverage and access, innovative research, and promising practices. Visitors can download white papers, bibliographies, and practical resources for evaluation and research, such as The Collaboration Primer and Public-Private Partnerships to Improve Health Care.
HealthWorks Collective is an editorially independent, moderated community for thought leaders in international healthcare providing a community where healthcare professionals can debate the latest issues and advances in their field. HealthWorks Collective examines issues such as remote diagnostics, insurance reform, hospital administration, health care IT, medical education and the future of global health.
Improving Chronic Illness Care
As a national program of the Robert Wood Johnson Foundation, ICIC is dedicated to improving the experience of chronic illness care for patients and their families. Based at the MacColl Institute for Healthcare Improvement in Seattle, ICIC promotes the use of evidence-based change concepts to enhance care. This site provides comprehensive resources about the Chronic Care Model, which views the patient as a partner with providers in decision-making, participation in care, and quality improvement. Useful tools and strategies for change and evaluation are shared.
Institute for Healthcare Improvement
Founded in 1991, IHI has been a leader in advancing the improvement of health care. IHI's ever-expanding website has a wealth of information on patient and family involvement in quality improvement and research. This includes strategies to capture the patient and family experience of care as well as to involve patients and families on research and evaluation teams. Particularly noteworthy are improvement stories from the Pursuing Perfection project, a challenge from the President, Donald Berwick, MD, to eliminate visiting restrictions, a Review of the Literature on Open Visiting Hours in the Intensive Care Unit, and a topical section devoted to patient- and family-centered care.
Institute of Medicine
The IOM is affiliated with the National Academies of Science and serves as a non-profit organization devoted to providing leadership on health care. It serves as an excellent source for leaders and managers to gain access to current research and publications devoted to health care. IOM's major report, Crossing the Quality Chasm: A New Health System for the 21st Century, serves as a landmark publication in examining the problems of the current U.S. health care system and offering strategies for change. The predecessor to this publication, To Err is Human: Building a Safer Health System, is also available on the site.
The Joint Commission
The Joint Commission, formerly know as JCAHO, is the major accreditation body for health care organizations and programs in the United States. The Joint Commission has integrated patient- and family-centered care in their standards and offers a section of the website for patients and families to become more informed participants in health care. The organization offers resources for health care professionals to improve the safety and quality of health care including a white paper discussing the critical role of patient-centeredness in quality and safety titled, Health Care at the Crossroads: Strategies for Improving the Medical Liability System and Preventing Patient Injury.
National Association of Children's Hospitals and Related Institutions
NACHRI is a member organization whose purpose is to provide support and resources to pediatric health care facilities. The organization promotes family-centered pediatric care through their conferences, programs, and resources. The Winter 2005 issue of Children's Hospitals Today is titled, Meeting the Needs of Patients and Families: Beyond the Basics and describes family-centered initiatives.
National Patient Safety Foundation
With its mission to improve the safety and welfare of patients in the health care system. NPSF provides an indispensable amount of resources and links. An on-line journal entitled, Focus on Patient Safety is available and includes discussions on patient and family involvement in safety efforts.
National Research Corporation
NRC has over 23 years experience in health care research involving clients such as hospitals and health systems, managed care organizations, and federal and state agencies. It continues to be a leader in driving change to improve the patient's experience of care. This site offers helpful information related to patient- and family-centered care. The Eight Dimensions of Patient-Centered Care provides a resource for learning about the principles of patient-centered care.
Planetree is an organization promoting a model of care that supports the patient and family as active participants in care and decision-making and emphasizes patient and family education. Planetree fosters cultural change in health care organizations and the creation of healing health care environments for patients, families, and staff.
The Pioneer Network is an organization bringing together elders, family members, administrators, nurses, physicians, social workers, educators, researchers, advocates, regulators and architects to promote culture change in all settings where elders live. The Network, through its conferences, speakers bureau, publications, and other resources, fosters the development of elder-directed communities.
Press Ganey Associates, Inc.
Press Ganey is a recognized leader in measurement and improvement of satisfaction with health care. They have worked with over 6,000 hospitals to assist in studying patient and family satisfaction and improving the overall quality of health care.
Robert Wood Johnson Foundation
RWJF has been working for over 30 years to improve U.S. health care through supporting research, advocacy, and policy work. RWJF has funded innovative programs that integrate patient- and family-centered care into their initiatives. A good example can be found in a document describing a current project, Designing the 21st Century Hospital: Serving Patients and Staff, a great resource for leaders and managers undergoing a design project.
Society of Critical Care Medicine
The mission of the Society of Critical Care Medicine is to secure the highest quality care for all critically ill and injured patients. The Society of Critical Care Medicine is the only professional organization devoted exclusively to the advancement of multiprofessional intensive care through excellence in patient care, education, research, and advocacy. Each year at the Society of Critical Care Medicine's Annual Critical Care Congress, the society's Patient & Family Committee awards the Family-Centered Care Award. The award recognizes innovation that improves the care provided to critically ill and injured patients and their families.
Society of Pediatric Nurses
This organization offers resources, educational opportunities, and current policy information for nurses and other interested professionals working in pediatrics. The publication, Family-Centered Care: Putting it into Action: The SPN/ANA Guide to Family-Centered Care provides guidance developed collaboratively with the American Nurses Association.