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A Roadmap for the Future

Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future Cover

Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: A Roadmap for the Future

Advancing the Practice
Mark Hines with MCG hospital staff

Mark Hines (seated), a volunteer Patient Advisor, meets regularly with MCG hospital staff to implement patient- and family-centered care practices. Marks wife, Barbara (standing on the left), often joins him.

Moving forward with patient- and family-centered care requires teamwork and responsiveness to individual, organizational, and community needs. But progress is also grounded in an understanding of the literature and of the experience of other organizations. This section offers access to helpful, credible resources available from this website and from the sites of other organizations. Patient and family advisors and leaders, organizational leaders and managers, clinicians, educators of health professionals, researchers, and architects and interior designers will find information and resources in their specific areas of interest and expertise.

Architects and Interior Designers
Clinicians
Educators of Health Professionals
Organizational Leaders and Managers
Patient and Family Advisors and Leaders
Researchers
Special Topics
Supporting Evidence

Results of the 2010 Survey of Paid Positions for Patient and Family Leaders

SurveyAs hospitals and health care systems implement patient- and family-centered practices, they are recognizing the importance of establishing paid positions for patients and family leaders. In an effort to capture baseline information about hiring patient and family leaders-specifically regarding position structure, title, and salary range-the Institute launched an informal voluntary Zoomerang™ survey for patient and family leaders hired by their health care organizations. The Institute included the survey on its website, distributed the survey to members of the Patient and Family Advisors/Leaders of Advisory Councils (PFAC) for Hospitals listserv, and invited patient and family leaders to respond via a survey link published in the Institute's electronic newsletter, Pinwheel Pages. The survey yielded 43 responses over a two-week period in March 2010. The Institute highlighted the results at the Hospitals and Communities Moving Forward Intensive Training Seminar in Dallas, TX, on April 21, 2010 in the session, Creating Paid Positions for Patient and Family Leaders: Key Considerations.

The survey information offers a view of what is happening around the country. According to the survey results, READ MORE...